15 Best Scleroderma Blogs and Websites
Here are 15 Best Scleroderma Blogs you should follow in 2023
1. National Scleroderma Foundation
Danvers, Massachusetts, US
The National Scleroderma Foundation was founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma. In their blog and news section, you will find information about the latest updates from the foundations, messages from the CEO, new research, disease-related information, healthy habits, and more.
33.3K⋅ 6.4K ⋅1 post / week Get Email Contact More
2. Scleroderma & Raynaud's UK
London, England, UK
Scleroderma & Raynaud's UK (SRUK) is the only UK Charity dedicated to improving the lives of people with scleroderma and Raynaud's phenomenon. They are here to improve awareness and understanding of these conditions, support those affected, fund groundbreaking research, and ultimately, find a cure. In their news section, they post inspiring stories of patients, the latest updates, medical research, vaccination alert, medical problems, and their solutions.
15.1K⋅ 4.7K ⋅2 posts / month Get Email Contact More
3. Scleroderma News
Scleroderma News is a digital platform intended to provide the scleroderma community with the most recent news and information on the disease, as well as first-hand community perspectives from patients and caregiver columnists. The publishing team at Scleroderma News consists of science writers and editors, veteran journalists; and columnists who are members of the scleroderma community. Their news section has all the latest and updated information about the disease.
7.1K⋅ 1.2K ⋅1 post / day Get Email Contact More
4. Fesca Scleroderma
Saint Maur, Belgium
Follow their news to stay up-to-date on FESCA's work as well as what's going on in the fields of Scleroderma and Systemic Sclerosis. They will update you on all things related to the disease, be it research, conferences, or the initiatives of their national member organizations. The FESCA was founded in 2007 and is registered as a charity. Their mission is to provide information to people with scleroderma, increase awareness on an international level, and advocate for equitable treatments for people with scleroderma throughout Europe.
2.8K⋅ 1K ⋅10 posts / quarter Get Email Contact More
5. Scleroderma Australia
Fitzroy, Victoria, Australia
Scleroderma Australia has been incorporated since 2005 to facilitate a national representative voice in supporting the scleroderma community across Australia. Delegates from the states make up their governing committee. Follow their news blog if you are looking for the latest scleroderma news, events and fundraising around Australia.
2.5K⋅ 34 ⋅4 posts / week Get Email Contact More
6. Medical Xpress » Scleroderma
Isle of Man
Medical Xpress is a medical and health news service that features the most comprehensive coverage in the fields of neuroscience, cardiology, cancer, HIV/AIDS, psychology, psychiatry, dentistry, genetics, diseases and conditions, medications, and more. On their Scleroderma page, you will read in detail about the disease, updates, the latest news, its gene mutations, variants, researchers, post effects, and more.
38.8K⋅ 18.6K ⋅10 posts / month Get Email Contact More
7. Nature.com » Systemic Sclerosis
London, England, UK
Nature Portfolio is here to serve the research community by publishing its most significant discoveries-findings that advance knowledge and address some of the greatest challenges that we face as a society today. On their site, they have a separate section for scleroderma that give us in-depth information about the disease and also shares the latest research and updates.
1 post / quarter Get Email Contact More
8. News Medical Life Sciences » Scleroderma
Since 2004, News Medical is one of the world's leading open-access medical and life science hubs. They are a tight-knit community of scientific, medical, and life sciences experts that produce and share the latest information in a readable, understandable way. On their page dedicated to Scleroderma, they share all the information regarding the disease including the latest updates in the medical world, research and study.
9 posts / quarter Get Email Contact More
9. Scleroderma Research Foundation
The Scleroderma Research Foundation (SRF) was founded in 1987 by Sharon Monsky, an entrepreneur, businesswoman, and person with scleroderma. Guided by Sharon's passion for a cure, SRF has become the largest nonprofit investor in scleroderma research in the United States. Their blog features articles on the Rare Disease Diversity Coalition, donations, foundation-related news, annual reports, the latest research, and more.
6 posts / quarter Get Email Contact More
10. Comfortable In My Thick Skin
Comfortable In My Thick Skin is a personal medical blog page run by Lisa, who herself fights with scleroderma and uses humor as a way to tackle it. In her blog page, you will read about her consultation session, her book, her own life story, educational workshops, patient perspective and also read in detail about the scleroderma disease.
1.6K ⋅1 post / year Get Email Contact More
11. Steffens Scleroderma Foundation
Albany, New York, US
The foundation's news section covers topics like disease updates, new research, medical community updates, and much more important information. The Steffens Scleroderma Foundation's mission is to support and promote research toward the treatment and cure of scleroderma, Degos disease, and other related disorders. Promote awareness and understanding of these disorders. Encourage collaborative efforts, nationally and internationally, aimed at realizing these goals.
609 ⋅10 posts / quarter Get Email Contact More
12. Scleroderma Warriors
The Scleroderma Warriors Project is a program that connects those in need of support and direction with other warriors who are experiencing or have experienced a similar journey. They provide inspiration, build relationships, and empower Warriors. Their news section features articles on disease updates, medical research, scholarship winner, community events, and more.
624 ⋅1 post / quarter Get Email Contact More
|Blogger Name||Blog Link||Total Blog Posts|
|Patricia Inácio, Phd||sclerodermanews.com/category/news||6|
|Margarida Maia, Phd||sclerodermanews.com/category/news||5|
|Lindsey Shapiro, Phd||sclerodermanews.com/category/news||4|
|Andrea Lobo, Phd||sclerodermanews.com/category/news||2|
|Marisa Wexler, Ms||sclerodermanews.com/category/news||2|
|Pei-suen Tsou Et Al.||nature.com/subjects/systemic-sclerosis||1|
|Dayoung Kim Et Al.||nature.com/subjects/systemic-sclerosis||1|
|Steve Bryson, Phd||sclerodermanews.com/category/news||1|
|Rosaria Talarico Et Al.||nature.com/subjects/systemic-sclerosis||1|
|Alfredo Guillén-del-castillo Et Al.||nature.com/subjects/systemic-sclerosis||1|
|Robert Lafyatis Et Al.||nature.com/subjects/systemic-sclerosis||1|
|Ariella Zehender Et Al.||nature.com/subjects/systemic-sclerosis||1|
|Enrico Vittorio Avvedimento Et Al.||nature.com/subjects/systemic-sclerosis||1|
Scleroderma Blog Topics
|Topic||Number of posts|
|News And Updates||2|
|Scleroderma Awareness Month||2|
|Cool Comedy • Hot Cuisine||1|
|Participate In Research||1|
|Dr. Howard Chang||1|
|Living With Scleroderma||1|
|Topic||Past Month Count|