15 Best Hemophilia Blogs and Websites
Hemophilia Blogs
Here are 15 Best Hemophilia Blogs you should follow in 2023
1. Hemophilia News Today
US
Hemophilia News Today is a digital platform providing daily updates on research, science and advice news for Hemophilia patients and caregivers.
Also in Hematology Blogs
hemophilianewstoda..
204 ⋅5 posts / week ⋅ Jan 2018 Get Email Contact
2. National Hemophilia Foundation
New York City, New York, US
NHF is the leading national nonprofit organization dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy, and research.
hemophilia.org
20.8K⋅ 7.1K⋅ 3.4K ⋅5 posts / week Get Email Contact
3. Hemophilia of Georgia
Sandy Springs, Georgia, US
Hemophilia of Georgia is a nonprofit organization dedicated to providing services and support for people who have hemophilia. It offers programs and services including blood clotting products, home infusion training, education, and activities for people who have hemophilia and other bleeding disorders.
hog.org/blog
2.6K⋅ 1.1K⋅ 583 ⋅3 posts / week ⋅ May 2011 Get Email Contact
4. The Haemophilia Society
London, England, UK
The Haemophilia Society is a UK-wide charity for everyone affected by a bleeding disorder. We work to provide easy access to information and opportunities to make the care and treatment of bleeding disorders consistent, effective and accessible to all people with bleeding disorders.
haemophilia.org.uk..
5.5K⋅ 4.6K ⋅1 post / week ⋅ Jul 2015 Get Email Contact
5. Hemophilia is for Girls
Calgary, Alberta, Canada
A blog all about raising awareness for Women with Bleeding disorders. My name is Rianne and I am a severe factor 5 Hemophiliac living in Calgary, Alberta, Canada and this is a blog about my life!
hemophiliaisforgir..
1 post / month ⋅ Feb 2010 Get Email Contact
6. Hemophilia Federation of America
Washington, District of Columbia, US
Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community. We are exclusively focused on the bleeding disorders patient and caregiver community.
hemophiliafed.org/..
16.8K⋅ 5.6K⋅ 2.9K ⋅30 posts / year ⋅ Jan 2009 Get Email Contact
7. Labiotech.eu
Berlin, Germany
Labiotech.eu is the leading digital media covering the European Biotech industry, read by 150,000 monthly visitors. Hope you'll enjoy our Biotech News!
labiotech.eu
12.4K⋅ 30.5K Interview: how has the first gene therapy for hemophilia B transformed research? European Commission approves first gene therapy for hemophilia B GC Biopharma acquiring hemophilia rare disease pipeline
8. Medical Bag | Medical News Articles
New York, NY,USA
Medical Bag offers news articles, medical lifestyle advice and featured content in addition to medical office business advice and strategy for physicians.
medicalbag.com
887⋅ 767 First Gene Therapy for Hemophilia B Gets FDA Approval Stable Clinical Outcomes Seen With Octocog Alfa Prophylaxis in Hemophilia A FDA Accepts Resubmitted BLA for Valoctocogene Roxaparvovec for Hemophilia A
9. Emergency Medicine Cases
Toronto, Ontario, Canada
Emergency Medicine Cases (EM Cases) is a free online medical education podcast, medical blog and website dedicated to providing online emergency medicine education and CME for physicians, residents, students nurses and paramedics.
emergencymedicinec..
30.9K⋅ 14.1K⋅ 3.5K EM Quick Hits 39 Overdiagnosis, Lytics for Submassive PE, Pericardial Effusion, Hemophilia Treatment EM Quick Hits 38 ACS in Older Patients, Rural Neonatal Resuscitation, Hemophilia, Hiccups, ECG Computer Interpretation
10. Healthing
Canada
Inspiring Canadians to live healthier lives with real-life stories, community connections, and health. Healthing is your Canadian source for healthcare information that matters.
healthing.ca
3.4K Know the Signs: Hemophilia Gene therapy for Hemophilia may soon become a reality — but when? Delays in getting treatments to Canadians with hemophilia have advocates cautiously hopeful about new gene therapies
11. GEN News
New Rochelle, New York, US
Get the latest news and information on genetic engineering and biotechnology including analysis, features, webinars, podcasts, and more.Genetic Engineering & Biotechnology News (GEN) has retained its position as the number one biotech publisher around the globe.
genengnews.com
538.7K⋅ 83.5K ⋅ Mar 2017 Hemophilia B Gene Therapy Shows Promise in Clinical Trial Hemophilia Gene Therapy Trial Achieves Sustained Clotting Factor Levels
Hemophilia Bloggers
Blogger Name | Blog Link | Total Blog Posts | |
---|---|---|---|
Keirsten Shaffer | hemophiliafed.org/home/news-stories | 83 | |
Joe MacDonald | hemophilianewstoday.com | 43 | |
jangarola | hemophilia.org | 41 | |
Cazandra Campos-MacDonald | hemophilianewstoday.com | 41 | |
Alliah Czarielle | hemophilianewstoday.com | 40 | |
Jennifer Lynne | hemophilianewstoday.com | 31 | |
iostrin | hemophilia.org | 29 | |
Marisa Wexler MS | hemophilianewstoday.com | 24 | |
Jess Milton | haemophilia.org.uk/news | 20 | |
Marta Figueiredo PhD | hemophilianewstoday.com | 18 | |
Patricia Inacio PhD | hemophilianewstoday.com | 17 | |
Steve Bryson PhD | hemophilianewstoday.com | 14 | |
Hawken Miller | hemophilianewstoday.com | 11 | |
s.wilkes | hemophiliafed.org/home/news-stories | 11 | |
Mary Chapman | hemophilianewstoday.com | 11 | |
amurtha | hemophilia.org | 11 | |
Shayna Korol | hemophilianewstoday.com | 9 | |
Margarida Maia PhD | hemophilianewstoday.com | 8 | |
Marisa Wexler, MS | hemophilianewstoday.com | 8 | |
vprice | hemophilia.org | 6 | |
Patricia Inácio, PhD | hemophilianewstoday.com | 5 | |
Suzy Fisk | haemophilia.org.uk/news | 5 | |
Steve Bryson, PhD | hemophilianewstoday.com | 4 | |
Jeff Courtney | haemophilia.org.uk/news | 4 | |
Shellye Horowitz | hemophilianewstoday.com | 4 |
Hemophilia Blog Topics
Topic | Number of posts |
---|---|
Hemophilia B | 30 |
Hemophilia A | 28 |
In The Twinkling Of An Eye - A Column By Joe MacDonald | 25 |
HemoWife - A Column By Alliah Czarielle | 21 |
Hemophilia 24/7 - A Column By Cazandra Campos-MacDonald | 21 |
Gene Therapy | 19 |
Caregivers | 17 |
Pain | 14 |
Hemophilia And Me – A Column By Jennifer Lynne | 12 |
Von Willebrand Disease | 12 |
Parenting | 12 |
HFA News | 12 |
Mental Health | 11 |
Bleeds | 10 |
Hemophilia And Me – A Column By Jennnifer Lynne | 10 |
COVID-19 | 9 |
Chronic Pain | 9 |
Bleed | 7 |
Bleeding | 7 |
Hospitalization | 7 |
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