15 Best Epilepsy Mom Blogs and Websites
Epilepsy Mom Blogs
Here are 15 Best Epilepsy Mom Blogs you should follow in 2024
1. Living Well With Epilepsy Blog
Philadelphia, Pennsylvania, US
This site provides a forum for mothers who have epilepsy to discuss their authentic experiences with life, travel, employment, courtship, marriage, mo...therhood, parenting, fitness, and other topics. Jessica Keenan Smith, who has had epilepsy for more than 25 years, developed Living Well With Epilepsy in 2009 and it offers the most recent epilepsy-related information.more
livingwellwithepil..
RSS 5K 4.7K 3.2K 30 posts / year 38 Get Email Contact
2. Elizabeth Aquino
Los Angeles, California, US
Click to read Elizabeth Aquino, a Substack piece by a mother who writes about caregiving, disability, and keeping herself motivated while supporting h...er epileptic child in her fight.more
elizabethaquino.su..
RSS 88 1 post / month 84 Get Email Contact
3. Mickie's Miracles Blog
Las Vegas, Nevada, US
The blog shares the experiences of moms of epileptic children and aims to raise global awareness of pediatric epilepsy through education, activism, an...d support so that families can receive the best possible care and an immediate diagnosis.more
mickiesmiracles.or..
RSS 2.7K 7.4K 9.7K 1 post / quarter 20 Get Email Contact
4. Calvin's Story
US
Calvin's Story is the blog I write about being the mother of my eight-year-old boy Calvin, who has intractable epilepsy. My mission is to increase... epilepsy awareness, dispel the myths, promote understanding and inspire empathy, all in hope of a cure.more
calvinsstory.com
RSS 1K 301 1 post / week 22 Get Email Contact
5. Sonya's Story
Phoenix, Arizona, US
Hi! I'm Ema, the mother of my late daughter Sonya, and this is my account where I relate my dear baby's struggle with epilepsy and how pers...pective can transform your life.more
sonyasstory.com
RSS 1.7K 148 360 1 post / week 12 Get Email Contact
6. Seizure Mama and Rose
North Carolina, US
Read Seizure mama and rose an epilepsy memoir of a mom sharing stories of her daughter surviving and thriving with epilepsy.
seizuremamaandrose..
RSS 209 2 posts / month 4 Get Email Contact
7. Keto Hope Foundation Blog
Mount Pleasant, South Carolina, US
Read the blog to learn about the experiences of amazing mothers who have epileptic children on how their lives have transformed as a result of incorpo...rating the ketogenic diet as a form of pediatric epilepsy treatment. Keto Hope Foundation is a nonprofit founded in 2016 dedicated to raising awareness and advancing the ketogenic diet for the treatment of pediatric epilepsy one family at a time.more
ketohope.org/blog
RSS 1.2K 2 posts / quarter 9 Get Email Contact
8. Life with a Live Wire
Hi! My name is Taz, and I have two smart girls, one of whom has epilepsy. Because I enjoy writing and want to share our experience raising a child wit...h epilepsy and a learning handicap, I started this blog. In addition, I wish to spread knowledge about epilepsy, its manifestations, and its consequences.more
lifewithalivewire...
RSS 108 2 posts / quarter 4 Get Email Contact
9. CDKL5 Blog
Wadsworth, Ohio, US
The battles mothers and their kids have with epileptic encephalopathy are chronicled in this blog. The International Foundation for CDKL5 is a non-pro...fit organization that provides the most current information on treatment advances and strives to raise awareness of this rare disorder within the medical and lay communities.more
cdkl5.com/blog
RSS 3.4K 2 41 Get Email Contact
10. Dylan is Superman » Epilepsy
Hi! I am Dylan's mother. My son, Late Dylan, battled epilepsy, and this blog has continued to track his path as a genuine hero even after his pas...sing. more
dylanissuperman.co..
RSS 9 Get Email Contact
11. Brain Blips An Epilepsy Journey
This Brain Blips blog follows the epilepsy journey of a mother who set out on a trip to see her daughter battle epilepsy and win.
brainblipjourney.b..
RSS 5 Get Email Contact
12. Seizing Hope
Hi! I'm Jill, Haley's mother, and Seizing Hope is where I share my experiences of being a divorced mother, navigating the challenging waters o...f parenting in general, and occasionally losing my bearings in the world of raising a kid with epilepsy.more
seizinghope.com
RSS 812 1 post / year 11 Get Email Contact
Epilepsy Mom Bloggers
| Blogger Name | Blog Link | Total Blog Posts | |
|---|---|---|---|
| Flower Roberts | seizuremamaandrose.org/2022/12/19/epilepsy-terms/ | 40 | |
| Daisy Argudin | ketohope.org/blog/2022/7/2/keto-super-stars-meet-4ybta | 21 | |
| Lifewithalivewire | lifewithalivewire.wordpress.com/2021/09/23/anxiety/ | 20 | |
| Elizabeth Aquino | elizabethaquino.substack.com/p/hospital-time-part-6 | 20 | |
| R. Zaila | blogger.com/profile/09869091452888159711 | 20 | |
| Jessica K. Smith | livingwellwithepilepsy.com/2023/aboutepilepsy/rescue-medication/5-things-to-know-about-administering-rescue-medications.html#utm_source=rss&utm_medium=rss&utm_campaign=5-things-to-know-about-administering-rescue-medications | 11 | |
| Seizinghope | seizinghope.com/2017/03/10/just-getting-through-the-day/ | 11 | |
| Tanner Wilkey | mickiesmiracles.org/turning-your-pain-into-passion-advocating-for-your-child-in-a-world-you-dont-understand/ | 10 | |
| 14dfk | dylanissuperman.com/2020/08/01/something-new-for-supermans-garden/ | 10 | |
| Amanda Jaksha | cdkl5.com/blog/ppe-donning-doffing/ | 9 | |
| Landis Wiedner | livingwellwithepilepsy.com/2023/epilepsy-stories/how-to-have-a-career-and-manage-epilepsy.html#utm_source=rss&utm_medium=rss&utm_campaign=how-to-have-a-career-and-manage-epilepsy | 6 | |
| Sinan Murat | mickiesmiracles.org/a-special-thank-you-from-kristie-ann-griess/ | 1 | |
| Marissa Bishop | cdkl5.com/blog/cdkl5-mom-walks-to-remember/ | 1 |