Cystic Fibrosis RSS Feeds

1. Cystic Fibrosis News Today RSS Feed

Cystic Fibrosis News Today

RSS Feed - cysticfibrosisnewstoday.com/.. 

Site - cysticfibrosisnewstoday.com

About Site - Cystic Fibrosis News Today is a digital news publication dedicated to offering comprehensive daily news coverage of CF. Read the latest Cystic Fibrosis news and articles. Stay informed about approved therapies, new medications and developments to treat CF.
Frequency - about 3 posts per week
Since - Apr 2014

2. CF Roundtable A Newsletter for Adults with Cystic Fibrosis RSS Feed

CF Roundtable A Newsletter for Adults with Cystic Fibrosis

RSS Feed - cfroundtable.com/blog-2/feed 

Site - cfroundtable.com/blog-2

About Site - The purpose of USACFA is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it. It also offers a forum for CF adults to communicate with each other. Our many columnists provide insights on a wide variety of subjects related to CF.
Frequency - about 1 post per week
Since - Mar 2011

3. Cystic Fibrosis community RSS Feed

Cystic Fibrosis community

RSS Feed - cysticfibrosis.com/feed 

Site - cysticfibrosis.com/blog

Headquarters in Bethesda, MD

About Site - A worldwide Cystic Fibrosis community combining cultures, nationalities and age groups. The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care.
Frequency - about 1 post per month

4. The Frey Life RSS Feed

The Frey Life

RSS Feed - youtube.com/feeds/videos.xml.. 

Site - youtube.com/user/thefreylife..

About Site - We are daily vloggers on Youtube sharing this crazy journey called life with all of you. Laugh with us. Cry with us. See the world with us. Get a glimpse of life with Cystic Fibrosis. Be encouraged as you watch our videos... we hope they make your smile and and bring joy to your day. Welcome to THE FREY LIFE!
Frequency - about 7 posts per week
Since - Mar 2014

5. Cystic Fibrosis Trust RSS Feed

Cystic Fibrosis Trust

RSS Feed - youtube.com/feeds/videos.xml.. 

Site - youtube.com/user/CFTrust/videos

United Kingdom

About Site - The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimited by cystic fibrosis (CF) for everyone affected by the condition. Our mission is to create a world where being born with CF no longer carries a death sentence, when everyone living with the condition will be able to look forward to a long, healthy life.
Frequency - about 1 post per month
Since - Oct 2008

6. Cystic Fibrosis Federation Australia RSS Feed

Cystic Fibrosis Federation Australia

RSS Feed - cysticfibrosis.org.au/all/bl.. 

Site - cysticfibrosis.org.au/all/blog

About Site - Cystic Fibrosis (CF) is the most common, genetically acquired, life-shortening chronic illness affecting young Australians today. Understand the risks, the effects and how to best live your life.
Frequency - about 1 post per month

7. Cystic Fibrosis Canada RSS Feed

Cystic Fibrosis Canada

RSS Feed - cysticfibrosis.ca/blog/feed 

Site - cysticfibrosis.ca/blog

Toronto, Ontario

About Site - Cystic Fibrosis Canada is a national charitable not-for-profit corporation committed to finding a cure for cystic fibrosis (CF). We invest more in life-saving CF research and care than any other non-governmental agency in Canada.
Frequency - about 1 post per month
Since - Apr 2016

8. Journal of Cystic Fibrosis RSS Feed

Journal of Cystic Fibrosis

RSS Feed - cysticfibrosisjournal.com/cu.. 

Site - cysticfibrosisjournal.com

About Site - The Journal of Cystic Fibrosis is the official journal of the European Cystic Fibrosis Society. The journal is devoted to promoting the research and treatment of cystic fibrosis. To this end the journal publishes original scientific articles, editorials, case reports, short communications and other information relevant to cystic fibrosis.
Frequency - about 1 post per month

9. Reddit - Cystic Fibrosis RSS Feed

Reddit - Cystic Fibrosis

RSS Feed - reddit.com/r/CysticFibrosis/.. 

Site - reddit.com/r/CysticFibrosis

About Site - A community for people who suffer from, or know someone with, the debilitating illness known as Cystic Fibrosis.
Frequency - about 1 post per month

10. Bennett Brinson Gamel: Fighting Cystic Fibrosis RSS Feed

Bennett Brinson Gamel: Fighting Cystic Fibrosis

RSS Feed - initforbennett.com/feeds/pos.. 

Site - initforbennett.com

Texas

About Site - Cystic fibrosis is a life-threatening genetic disease that causes mucus to build up and clog some of the organs in the body, particularly the lungs and pancreas. When mucus clogs the lungs, it can make breathing very difficult. The thick mucus also causes bacteria (or germs) to get stuck in the airways, which causes inflammation (or swelling) and infections that lead to lung damage.
Frequency - about 1 post per month
Since - Jul 2008

11. Claire's Place Foundation RSS Feed

Claire's Place Foundation

RSS Feed - clairesplacefoundation.org/b.. 

Site - clairesplacefoundation.org/blog

California

About Site - Claire Wineland is founder of Claire's Place Foundation, a 501c3 committed to helping others living with cystic fibrosis like herself. Our mission is to heighten public awareness about Cystic Fibrosis and improve the quality of life for the families it affects by providing education, life skills, inspiration, and positive support.
Frequency - about 1 post per month
Since - Jul 2011

12. Continent Chasers RSS Feed

Continent Chasers

RSS Feed - continentchasers.com/feed 

Site - continentchasers.com

Ireland

About Site - Continent Chasers Wife & Cystic Fibrosis Husband From Poland and Ireland travelling the world 84 countries. Mission is to Visit Each Country on the planet and to highlight Cystic Fibrosis and to show that serious illness doesn't have to stop you following your dreams.
Frequency - about 1 post per month

13. Cystic Fibrosis New Zealand | Creating Better Tomorrows RSS Feed

Cystic Fibrosis New Zealand | Creating Better Tomorrows

RSS Feed - cfnz.org.nz/feed 

Site - cfnz.org.nz

About Site - Cystic Fibrosis New Zealand is the only dedicated organisation caring for the social, emotional and financial needs of the 500 people in NZ who have the condition. CFANZ will optimise quality of life for people with cystic fibrosis and their families; striving for normal life expectancy.
Frequency - about 1 post per month

14. IV Solutions blogs RSS Feed

IV Solutions blogs

RSS Feed - ivsolutions.com/blog/feed 

Site - ivsolutions.com/blog

United States

About Site - IV Solutions is a full service cystic fibrosis pharmacy that provides home infusion treatments, respiratory inhalation therapies, and specialty CF medications. Since 1986, we've been there to help cystic fibrosis patients along with their families and healthcare providers. We're here to support you through individualized instruction, proactive refill reminders, on-going care coordination.
Frequency - about 1 post per month
Since - Dec 2015

15. With Every Breath: My Life with Cystic Fibrosis RSS Feed

With Every Breath: My Life with Cystic Fibrosis

RSS Feed - livewitheverybreath.wordpres.. 

Site - livewitheverybreath.wordpres..

About Site - Once you choose hope, anything's possible. it's also a good way for me to connect with others in the CF community. Others in my situation may find it comforting to see they aren't alone. Blog by jordan.
Frequency - about 1 post per month
Since - Oct 2013

16. Stanley's Journey Get it off your chest CF RSS Feed

Stanley's Journey Get it off your chest CF

RSS Feed - getitoffyourchestcf.com/feed 

Site - getitoffyourchestcf.com

Leicester, England

About Site - Stanley-Ray was diagnosed with cystic fibrosis at 20 days old, this facebook page is to keep people updated on his progress & to raise funds for CF trust.
Frequency - about 1 post per month
Since - Sep 2016

17. Love to Breathe RSS Feed

Love to Breathe

RSS Feed - lovetobreathe.blogspot.com/f.. 

Site - lovetobreathe.blogspot.com

About Site - Blog by Somer Love, I created Love To Breathe® to educate and raise awareness about Cystic Fibrosis and spread Love whenever I can. I want to change the world... Join my fight!
Frequency - about 1 post per month
Since - Mar 2008

18. Behind the Smile of a Cystic RSS Feed

Behind the Smile of a Cystic

RSS Feed - behindthesmileofacystic.blog.. 

Site - behindthesmileofacystic.blog..

About Site - My personal spin with Cystic Fibrosis tips, tricks, positive outlooks. All while making my dreams come true! 'Always Smile. I want to encourage everyone with CF young or old to reach for you dreams, no matter how big or small they can be. As long as you have the right attitude in life, your disease will not bring you down!
Frequency - about 1 post per month
Since - Jan 2012

19. Cystic Fibrosis Kids RSS Feed

Cystic Fibrosis Kids

RSS Feed - cfkids.org.uk/feed 

Site - cfkids.org.uk

Portsmouth, England

About Site - CF Kids helps by providing equipment, such as nebulisers, which can be an essential part of a CF Kids daily routine at home, but may not be available because of the NHS budget. We also provide exercise equipment and lessons, plus have a number of other services we offer to families in the Portsmouth and Southampton areas.
Frequency - about 1 post per month

20. More Than DNA DNA doesn't define our family RSS Feed

More Than DNA DNA doesn't define our family

RSS Feed - morethandna.org/feed 

Site - morethandna.org

Peoria, Illinois

About Site - Spreading Awareness about Cystic Fibrosis through sharing our experiences in life! AND finding a CURE for CF!
Frequency - about 1 post per month

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