Top 70 Cystic Fibrosis RSS Feeds

Follow Top 70 Cystic Fibrosis RSS Feeds from one place on Feedspot Reader
The best Cystic Fibrosis rss feed list curated from thousands of rss feeds on the web and ranked by traffic, social media followers & freshness.Learn more

Cystic Fibrosis RSS Feeds

Here are 70 Best Cystic Fibrosis RSS Feeds you should follow in 2023

1. Cystic Fibrosis News Today RSS Feed

Cystic Fibrosis News Today Pensacola, Florida, US
Cystic Fibrosis News Today is a digital news publication dedicated to offering comprehensive daily news coverage of CF. Read the latest Cystic Fibrosis news and articles. Stay informed about approved therapies, new medications and developments to treat CF.
22.7K 5.2K 9.1K 6 posts / week Apr 2014 Get Email Contact

2. CF Roundtable A Newsletter for Adults with Cystic Fibrosis RSS Feed

CF Roundtable A Newsletter for Adults with Cystic Fibrosis US
The purpose of USACFA is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it. It also offers a forum for CF adults to communicate with each other. Our many columnists provide insights on a wide variety of subjects related to CF.
2.3K 980 1 post / month Mar 2011 Get Email Contact

3. Cystic Fibrosis community RSS Feed

Cystic Fibrosis community Bethesda, Maryland, US
A worldwide Cystic Fibrosis community combining cultures, nationalities and age groups. The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care.
233.8K 31.5K 1 post / month Get Email Contact

4. Cystic Fibrosis Canada RSS Feed

Cystic Fibrosis Canada Toronto, Ontario, Canada
Cystic Fibrosis Canada is a national charitable not-for-profit corporation committed to finding a cure for cystic fibrosis (CF). We invest more in life-saving CF research and care than any other non-governmental agency in Canada.
19.1K 6.4K 4.7K 2 posts / week Apr 2016 Get Email Contact

5. Journal of Cystic Fibrosis RSS Feed

Journal of Cystic Fibrosis
The Journal of Cystic Fibrosis is the official journal of the European Cystic Fibrosis Society. The journal is devoted to promoting the research and treatment of cystic fibrosis. To this end the journal publishes original scientific articles, editorials, case reports, short communications and other information relevant to cystic fibrosis.
2 posts / week Get Email Contact

6. Emily's Entourage Blog RSS Feed

Emily's Entourage Blog Philadelphia, Pennsylvania, US
Emily's Entourage is a nonprofit organization that raises money and awareness to help find a cure for rare mutations of cystic fibrosis, a genetic disorder that generally affects a person's lungs and digestive system. Our goal is to expedite life-saving treatments and a cure for those with nonsense mutations of CF who are waiting with bated and fading breath.
9.4K 2K 1 post / month Get Email Contact

7. Living life breathlessly RSS Feed

Living life breathlessly Johannesburg, Gauteng, South Africa
Life is not measured by the number of breaths we take, but by the moments that take our breath away.
1 1 post / year Dec 2007 Get Email Contact

8. Cystic Fibrosis New Zealand | Creating Better Tomorrows RSS Feed

Cystic Fibrosis New Zealand | Creating Better Tomorrows New Zealand
Cystic Fibrosis New Zealand is the only dedicated organisation caring for the social, emotional and financial needs of the 500 people in NZ who have the condition. CFANZ will optimise quality of life for people with cystic fibrosis and their families; striving for normal life expectancy.
5.5K 3 posts / quarter Get Email Contact

9. Cody Dieruf Benefit Foundation | Life with Cystic Fibrosis RSS Feed

Cody Dieruf Benefit Foundation | Life with Cystic Fibrosis Bozeman, Montana, US
The Cody Dieruf Benefit Foundation was formed in March of 2006 in honor of Cody Dieruf who passed away from Cystic Fibrosis at 23 years old. Uniting communities and families living with Cystic Fibrosis by raising awareness, providing emotional and financial assistance, encouraging health management, and inspiring life experiences.
2.1K 7 1 post / month Get Email Contact

10. CF Happens RSS Feed

CF Happens Maryville, Tennessee, US
I am a military wife, bonus mom and happen to have Cystic Fibrosis (CF).I am not a medical expert and this is just my story.
32 2 posts / quarter Oct 2013 Get Email Contact

11. Joyfully Breathing RSS Feed

Joyfully Breathing Texas, US
A CFer's Joyous Journey Through Life. I hope you enjoy reading about how I live my life as CFer! My dream job is to work with other cystic fibrosis patients as a Registered Dietitian Nutritionist (RDN) to help them gain weight so that they can live a longer, healthier life.
1 post / month Nov 2013 Get Email Contact

12. Bright Hope RSS Feed

Bright Hope
Strength for today and BRIGHT HOPE for tomorrow! I am a 39-year-old woman with cystic fibrosis. I am also a daugher, sister, wife, mother, teacher and friend. Most importantly I'm God's child. This blog is about my life including the challenges and blessings of living with cystic fibrosis, my faith, my family, and more!
1 post / week Apr 2014 Get Email Contact

13. The Frey Life RSS Feed

The Frey Life Boston, Massachusetts, US
We are daily vloggers on Youtube sharing this crazy journey called life with all of you. Laugh with us. Cry with us. See the world with us. Get a glimpse of life with Cystic Fibrosis. Be encouraged as you watch our videos... we hope they make your smile and and bring joy to your day. Welcome to THE FREY LIFE!
112.1K 7.2K 3 posts / week Mar 2014 Get Email Contact

14. Cystic Fibrosis Trust RSS Feed

Cystic Fibrosis Trust UK
The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimited by cystic fibrosis (CF) for everyone affected by the condition. Our mission is to create a world where being born with CF no longer carries a death sentence, when everyone living with the condition will be able to look forward to a long, healthy life.
88.5K 27.8K 4 posts / quarter Oct 2008 Get Email Contact

15. Cystic Fibrosis Federation Australia RSS Feed

Cystic Fibrosis Federation Australia Sydney, New South Wales, Australia
Cystic Fibrosis (CF) is the most common, genetically acquired, life-shortening chronic illness affecting young Australians today. Understand the risks, the effects and how to best live your life.
10.2K Get Email Contact

16. Bennett Brinson Gamel: Fighting Cystic Fibrosis RSS Feed

Bennett Brinson Gamel: Fighting Cystic Fibrosis Texas, US
Cystic fibrosis is a life-threatening genetic disease that causes mucus to build up and clog some of the organs in the body, particularly the lungs and pancreas. When mucus clogs the lungs, it can make breathing very difficult. The thick mucus also causes bacteria (or germs) to get stuck in the airways, which causes inflammation (or swelling) and infections that lead to lung damage.
978 Get Email Contact

17. Claire's Place Foundation RSS Feed

Claire's Place Foundation California, US
Claire Wineland is founder of Claire's Place Foundation, a 501c3 committed to helping others living with cystic fibrosis like herself. Our mission is to heighten public awareness about Cystic Fibrosis and improve the quality of life for the families it affects by providing education, life skills, inspiration, and positive support.
31.6K 21.8K 74K Get Email Contact

18. Cystic Fibrosis Foundation | CF community Blog RSS Feed

Cystic Fibrosis Foundation | CF community Blog Bethesda, Maryland, US
The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care. The CF Community Blog highlights voices from across the CF community, touching on all aspects of life with cystic fibrosis.
233.8K 31.5K 3 posts / year Get Email Contact

19. Tales of Citrus and Salt RSS Feed

Tales of Citrus and Salt
When Life Gives you Lemon is published by a mom of a little guy that has CF. You will read about her daily life as well as how to care for a child with CF.
Get Email Contact

20. Continent Chasers RSS Feed

Continent Chasers Ireland
Continent Chasers Wife & Cystic Fibrosis Husband From Poland and Ireland travelling the world 84 countries. Mission is to Visit Each Country on the planet and to highlight Cystic Fibrosis and to show that serious illness doesn't have to stop you following your dreams.
2K 1.9K 1.6K Get Email Contact

21. IV Solutions blogs RSS Feed

IV Solutions blogs US
IV Solutions is a full service cystic fibrosis pharmacy that provides home infusion treatments, respiratory inhalation therapies, and specialty CF medications. Since 1986, we've been there to help cystic fibrosis patients along with their families and healthcare providers. We're here to support you through individualized instruction, proactive refill reminders, on-going care coordination.
1.8K 16 Get Email Contact

22. With Every Breath: My Life with Cystic Fibrosis RSS Feed

With Every Breath: My Life with Cystic Fibrosis US
Once you choose hope, anything's possible. it's also a good way for me to connect with others in the CF community. Others in my situation may find it comforting to see they aren't alone. Blog by jordan.
Get Email Contact

23. Stanley's Journey Get it off your chest CF RSS Feed

Stanley's Journey Get it off your chest CF Leicester, England, UK
Stanley-Ray was diagnosed with cystic fibrosis at 20 days old, this facebook page is to keep people updated on his progress & to raise funds for CF trust.
812 352 322 Get Email Contact

24. Love to Breathe RSS Feed

Love to Breathe US
Blog by Somer Love, I created Love To Breathe® to educate and raise awareness about Cystic Fibrosis and spread Love whenever I can. I want to change the world... Join my fight!
10.2K 1.7K 13.1K Get Email Contact

25. Behind the Smile of a Cystic RSS Feed

Behind the Smile of a Cystic
My personal spin with Cystic Fibrosis tips, tricks, positive outlooks. All while making my dreams come true! 'Always Smile. I want to encourage everyone with CF young or old to reach for you dreams, no matter how big or small they can be. As long as you have the right attitude in life, your disease will not bring you down!
191 Get Email Contact

26. Cystic Fibrosis Kids RSS Feed

Cystic Fibrosis Kids Portsmouth, England, UK
CF Kids helps by providing equipment, such as nebulisers, which can be an essential part of a CF Kids daily routine at home, but may not be available because of the NHS budget. We also provide exercise equipment and lessons, plus have a number of other services we offer to families in the Portsmouth and Southampton areas.
1.5K 248 Get Email Contact

27. More Than DNA DNA doesn't define our family RSS Feed

More Than DNA DNA doesn't define our family Peoria, Illinois, US
Spreading Awareness about Cystic Fibrosis through sharing our experiences in life! AND finding a CURE for CF!
1.1K Get Email Contact

28. Past the Point of No Return RSS Feed

Past the Point of No Return tor-pastthepointofnoreturn.b.. 
A place for me to record the highs and lows of life on the transplant list, and my new life beyond it. Cystic Fibrosis waited 4years for a double lung transplant and finally recieved the gift of life 10.10.11! All views my own.
3.6K Get Email Contact

29. 66 roses RSS Feed

66 roses Hershey, Pennsylvania, US
Blog by Erin Moore, I'm just a mom with 3 wonderful kids, two of which are twins, one of which has Cystic Fibrosis, and I want to share my thoughts. This blog, 66 Roses, is dedicated to finding the cure.
391 2.3K Get Email Contact

30. Amy Labonte | Now is the Winter of Our Discontent RSS Feed

 Amy Labonte | Now is the Winter of Our Discontent Yukon, Oklahoma, US
A mom, her CF warrior, and our journey through life, love and hardships. Striving for a cure, trying to raise awareness.
693 708 Get Email Contact

31. The Sprog's Life RSS Feed

The Sprog's Life Cobham, England, UK
Blog by George. I started this blog back in January 2012. At first i didnt want this to be a public blog, just some where i could write my thoughts and feelings, sort of a diary and journey through my time getting on and waiting on the transplant list.
994 Get Email Contact

32. The So What Life RSS Feed

The So What Life US
A blog to inspire members of the CF community to live positively and embrace everything life has to offer. Thriving with a chronic illness, cystic fibrosis.
1.3K Get Email Contact

33. This is Eli RSS Feed

This is Eli
A blog about Eli. A blog about survival - and by that, I mean life! Eli, a boy living cystic fibrosis. We are all about living and ❤️ adventure. I write to shed light on life with CF - and mostly, that means writing about the game of survival called life. We do our best at wellness and nutrition to keep the tribe, and Eli, as healthy as possible.
416 Get Email Contact

34. Tim Wotton | Counting up to 50 RSS Feed

Tim Wotton | Counting up to 50 London, England, UK
Tim Wotton, a Cystic Fibrosis sufferer, has been defying the odds for over 43 years and is sharing his life lessons and experiences. After counting down to the massive 40 milestone in 2011, he is now regularly sharing his trials and tribulations via this blog.
874 2 posts / quarter Jan 2011 Get Email Contact

35. The Living, Breathing Wendy RSS Feed

The Living, Breathing Wendy Wisconsin, US
A blog about living life to the fullest despite battling Cystic Fibrosis, a genetic lung disease.
423 318 Get Email Contact

36. Every Breath Means Hope RSS Feed

Every Breath Means Hope Sanford, North Carolina, US
This is my life... Cystic Fibrosis. Friends. Family. Music. Animals. Love. Faith. God. Miracles. Dreams. Hope.
275 Get Email Contact

37. Lucky CF Mom | Possibilities RSS Feed

Lucky CF Mom | Possibilities Idaho, US
I have the most amazing good luck. 8 years ago, my world came crashing down when my newborn baby was diagnosed with the genetic disease cystic fibrosis. Today, we feel like the most fortunate family in the world because we have Kalydeco! Now my goal is to work toward more personalized research, to help bring the most effective treatment to each and every person living with CF!
443 Get Email Contact

38. I dream of Daisy RSS Feed

I dream of Daisy
Former civil servant Donna Sim has joined the growing trend of parent bloggers. She takes you on a journery sharing inspirational moments, as well as personal accounts written with a heavy heart about her life battling Cystic Fibrosis and her struggles to conceive her miracle baby Daisy.
217 59 146 Get Email Contact

39. CF Stinks RSS Feed

CF Stinks US
Having CF Stinks, but that doesn't stop me! I'll share with you a little about myself, my life with Cystic Fibrosis and anything else that crosses my mind.
210 3 posts / year Dec 2010 Get Email Contact

40. Cystic Fibrosis Guernsey RSS Feed

Cystic Fibrosis Guernsey UK
Cystic Fibrosis Guernsey's aim is to give local families and carers friendly support and advice. Local families who suffer with the issues surrounding CF have little or no way of sharing there ups and downs, their problems, we should help each other.
178 157 Get Email Contact

41. But You Look So Well RSS Feed

But You Look So Well Oxford, England, UK
Cystic Fibrosis blogger Helen Roper is waiting for a Double Lung Transplant. 'But You Look So Well' is the usual reply. She doesn't like writing about herself in the third person! Capturing Helen Roper's journey through Cystic fibrosis whilst waiting for a double lung transplant in the UK with trademark dry humor.
1 post / quarter May 2019 Get Email Contact

42. Becoming Chayil RSS Feed

Becoming Chayil
Chayil is a beautiful Hebrew word that translates to strength, courage, and virtue, especially in the face of adversity, borne of closeness to and dependence on our Heavenly Father. My story, found throughout the pages of this blog, is one of redemption, forgiveness, and our Father's incomprehensible, incredible love. My story is my own, but chances are if you're reading this now, it's yours too... Or you want it to be. And it can! I created She is Chayil not only for myself but in hopes of using my storms to uplift and encourage others who might be going through similar things.
Get Email Contact

43. The Transplanted Dad RSS Feed

The Transplanted Dad US
My life as a father and husband with Cystic Fibrosis and two donated lungs. Here I will share the story of my life with Cystic Fibrosis and the new direction it's headed in following my double lung transplant
133 Get Email Contact


Jamiebug- I have Cystic Fibrosis with Cepacia...Despite being told by almost every hospital in the country that I was not a candidate for a lung transplant due to Cepacia- I didn't give up and I found the ONE place that took a chance on me! I am almost 3 years post transplant and I feel great! You will learn of her thoughts, feelings and how she got through each day.
96 38 Get Email Contact

45. One Breath at a Time - Living with Cystic Fibrosis RSS Feed

One Breath at a Time - Living with Cystic Fibrosis
A lot of people ask me what made me decide to start writing a blog. I first got the idea after finding out that I might need a transplant. This blog is to raise awareness too, and that has been the biggest blessing I could have asked for. I have people reading my blog and learning about what Cystic Fibrosis is.
Get Email Contact

46. Michael Goodwin Sailing RSS Feed

Michael Goodwin Sailing michaelgoodwinsailing.blogsp.. 
Hello, and welcome to my occasional blog about sailing adventures with friends. I aim to raise funds for the Cystic Fibrosis Trust through sponsorship, so please consider making a donation to the trust via the link on this website to help us to beat this dreadful disease that limits the lives of so many young people. I do hope you enjoy reading my blog.
16 Get Email Contact

47. RSS Feed
Why am I the Salty Southpaw? Why I'm Salty - Cystic Fibrosis is a genetic disease where my body has trouble transporting salt. This causes thick mucus in my lungs and body, and my sweat has more salt in it than yours. Southpaw - I am a left-handed baseball player! Baseball and pitching is my passion! Check out my journey with CF.
9 Get Email Contact

48. TheraPink RSS Feed

TheraPink US
I created this blog to raise awareness about CF through sharing my personal experiences and perspective. I hope to dispel some of the myths and provide a basic education on my experiences with Cystic Fibrosis. Blog by Therapink.
1 1 post / year Jan 2013 Get Email Contact

49. Illness Inspired Words RSS Feed

Illness Inspired Words Oregon, US
The one thing that many don't realize about Cystic Fibrosis is how isolating it can be. We are discouraged to spend any quality time together unless we abide by strict infection control protocols. With that being said, many CF'ers and their families have sort of decided to stay away for one another in a best practices effort to not cross contaminate.
Get Email Contact

50. The Journey of Faith RSS Feed

The Journey of Faith US
Desiring to be more like Christ through the trials and joys of this life. On The Journey of Faith you will read about how a mom and family deal with the fact that they have a child with CF. You will read about the fun and happy times as well as trying times.
Get Email Contact

51. The Unknown Cystic RSS Feed

The Unknown Cystic US
Leaving a digital record for my family & virtual friends.
1.1K Get Email Contact

52. Cat Boogies Dream | L Word RSS Feed

Cat Boogies Dream | L Word Raleigh, North Carolina, US
I like cats, iced coffee and the color purple. I like reading, writing, making soap and thinking about what's next. I am a double lung transplant patient with cystic fibrosis.
Get Email Contact

53. Inspire; to breathe RSS Feed

Inspire; to breathe
Blog by Suzanne. Blogging about home, life, living with Cystic Fibrosis, gardening, general love for all things vintage, and reasons why those topics are more interesting than they sound.
588 Get Email Contact

54. Two Salty Boys RSS Feed

Two Salty Boys Chicago, Illinois, US
Two Salty Boys discusses the ride of a lifetime, having two boys that both have CF. You will read about the rollercoaster of life issues on this blog.
Get Email Contact

55. *Live*Laugh*Love*Breathe* RSS Feed

Colleen's blog is about how she tries to incorporate Live, Love, Laugh into her daily life with CF.
Get Email Contact

56. Inhaling Hope RSS Feed

Inhaling Hope
A blog about mothering despite Cystic Fibrosis.The owner of this blog discusses her journey through life as a wife and mother. However, she has one thing that increases her challenges to these things. She has CF.
Get Email Contact

57. Blue-Eyed Breather RSS Feed

Blue-Eyed Breather blue-eyedbreather.blogspot.c..
Blue Eyed Breather is a blog about a young lady who strives to live a normal life. Emily blogs about the good and the not so good in her life and about her walk with God.
Get Email Contact

58. Breathe Bravely RSS Feed

Breathe Bravely Sioux Falls, South Dakota, US
A blog about my beautiful life living with Cystic Fibrosis: to educate and help promote awareness and understanding associated with CF.Dedicated to sharing my experiences of the good, the bad, the ugly, and the funny, so that all who so eagerly support the fight against CF, will know how much their love and support truly means.
237 Get Email Contact

59. The Race Marked Out For Me | Running with Purpose RSS Feed

The Race Marked Out For Me | Running with Purpose
I want to write about my cf journey for a bunch of reasons to Connect, Share, Spread awareness and educate, Importance of Exercise, Inspire and encourage, Thankfulness. Embracing life's journey with cystic fibrosis.
Get Email Contact

60. CF Is Not Forever RSS Feed

CF Is Not Forever
Cystic Fibrosis is part of our family now on Earth, but we know that Cystic Fibrosis is not forever, but our family is!
Get Email Contact

61. The Salty Cyster RSS Feed

The Salty Cyster
Life with Cystic Fibrosis and other random thoughts along the way.
Get Email Contact

62. Always Have Hope RSS Feed

Always Have Hope
Following my life with Cystic fibrosis.
Get Email Contact

Here is a list of most popular categories in Cystic Fibrosis rss feeds