70 Best Cystic Fibrosis Blogs and Websites

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The best Cystic Fibrosis blogs from thousands of blogs on the web and ranked by traffic, social media followers & freshness.Learn more

Cystic Fibrosis Blogs

Here are 70 Best Cystic Fibrosis Blogs you should follow in 2024

1. Cystic Fibrosis News Today

Cystic Fibrosis News Today Pensacola, Florida, US
Cystic Fibrosis News Today is a digital news publication dedicated to offering comprehensive daily news coverage of CF. Read the latest Cystic Fibrosi...s news and articles. Stay informed about approved therapies, new medications and developments to treat CF.more
22.7K 5.2K 9.1K 2 posts / day Apr 2014 DA 51 Get Email Contact

2. CF Roundtable A Newsletter for Adults with Cystic Fibrosis

CF Roundtable A Newsletter for Adults with Cystic Fibrosis US
The purpose of USACFA is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the l...atest treatments and research to fight it. It also offers a forum for CF adults to communicate with each other. Our many columnists provide insights on a wide variety of subjects related to CF.more
2.3K 971 1 post / month Mar 2011 DA 28 Get Email Contact

3. The Frey Life

The Frey Life Boston, Massachusetts, US
We are daily vloggers on Youtube sharing this crazy journey called life with all of you. Laugh with us. Cry with us. See the world with us. Get a glim...pse of life with Cystic Fibrosis. Be encouraged as you watch our videos... we hope they make your smile and and bring joy to your day. Welcome to THE FREY LIFE!more
112.1K 7.1K 2 posts / quarter Mar 2014 Get Email Contact

4. Cystic Fibrosis Trust

Cystic Fibrosis Trust UK
The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimited by cystic fibrosis (CF) for everyone affected by the ...condition. Our mission is to create a world where being born with CF no longer carries a death sentence, when everyone living with the condition will be able to look forward to a long, healthy life. more
88.5K 27.8K 1 post / week Oct 2008 Get Email Contact

5. Cystic Fibrosis Canada

Cystic Fibrosis Canada Toronto, Ontario, Canada
Cystic Fibrosis Canada is a national charitable not-for-profit corporation committed to finding a cure for cystic fibrosis (CF). We invest more in lif...e-saving CF research and care than any other non-governmental agency in Canada.more
19.2K 6.4K 6.6K 10 posts / quarter Apr 2016 DA 53 Get Email Contact

6. Journal of Cystic Fibrosis

Journal of Cystic Fibrosis The Journal of Cystic Fibrosis is the official journal of the European Cystic Fibrosis Society. The journal is devoted to promoting the research and t...reatment of cystic fibrosis. To this end the journal publishes original scientific articles, editorials, case reports, short communications and other information relevant to cystic fibrosis. more
7 posts / month DA 35 Get Email Contact

7. Emily's Entourage Blog

Emily's Entourage Blog Philadelphia, Pennsylvania, US
Emily's Entourage is a nonprofit organization that raises money and awareness to help find a cure for rare mutations of cystic fibrosis, a genetic dis...order that generally affects a person's lungs and digestive system. Our goal is to expedite life-saving treatments and a cure for those with nonsense mutations of CF who are waiting with bated and fading breath.more
9.4K 2K 7 posts / quarter DA 40 Get Email Contact

8. Cystic Fibrosis New Zealand | Creating Better Tomorrows

Cystic Fibrosis New Zealand | Creating Better Tomorrows New Zealand
Cystic Fibrosis New Zealand is the only dedicated organisation caring for the social, emotional and financial needs of the 500 people in NZ who have t...he condition. CFANZ will optimise quality of life for people with cystic fibrosis and their families; striving for normal life expectancy.more
5.5K 1 post / week DA 33 Get Email Contact

9. Inspire; to breathe

Inspire; to breathe Blog by Suzanne. Blogging about home, life, living with Cystic Fibrosis, gardening, general love for all things vintage, and reasons why those topics ...are more interesting than they sound.more
588 1 post / month Jul 2010 DA 16 Get Email Contact

10. Cody Dieruf Benefit Foundation | Life with Cystic Fibrosis

Cody Dieruf Benefit Foundation | Life with Cystic Fibrosis Bozeman, Montana, US
The Cody Dieruf Benefit Foundation was formed in March of 2006 in honor of Cody Dieruf who passed away from Cystic Fibrosis at 23 years old. Uniting c...ommunities and families living with Cystic Fibrosis by raising awareness, providing emotional and financial assistance, encouraging health management, and inspiring life experiences.more
2.1K 7 1 post / day DA 19 Get Email Contact

11. Tim Wotton | Counting up to 50

Tim Wotton | Counting up to 50 London, England, UK
Tim Wotton, a Cystic Fibrosis sufferer, has been defying the odds for over 43 years and is sharing his life lessons and experiences. After counting do...wn to the massive 40 milestone in 2011, he is now regularly sharing his trials and tribulations via this blog.more
881 1 post / month Jan 2011 DA 19 Get Email Contact

12. Living life breathlessly

Living life breathlessly Johannesburg, Gauteng, South Africa
Life is not measured by the number of breaths we take, but by the moments that take our breath away.
1 2 posts / quarter Dec 2007 DA 18 Get Email Contact

13. CF Happens

CF Happens Maryville, Tennessee, US
I am a military wife, bonus mom and happen to have Cystic Fibrosis (CF).I am not a medical expert and this is just my story.
32 2 posts / month Oct 2013 DA 6 Get Email Contact

14. TheraPink

TheraPink US
I created this blog to raise awareness about CF through sharing my personal experiences and perspective. I hope to dispel some of the myths and provid...e a basic education on my experiences with Cystic Fibrosis. Blog by Therapink.more
1 1 post / month Jan 2013 DA 16 Get Email Contact

15. CF Stinks

CF Stinks US
Having CF Stinks, but that doesn't stop me! I'll share with you a little about myself, my life with Cystic Fibrosis and anything else that cr...osses my mind. more
210 1 post / week Dec 2010 DA 5 Get Email Contact

16. Breathe Bravely

Breathe Bravely Sioux Falls, South Dakota, US
A blog about my beautiful life living with Cystic Fibrosis: to educate and help promote awareness and understanding associated with CF.Dedicated to sh...aring my experiences of the good, the bad, the ugly, and the funny, so that all who so eagerly support the fight against CF, will know how much their love and support truly means.more
234 1 post / quarter Apr 2014 DA 18 Get Email Contact

17. Bright Hope

Bright Hope Strength for today and BRIGHT HOPE for tomorrow! I am a 39-year-old woman with cystic fibrosis. I am also a daugher, sister, wife, mother, teacher and... friend. Most importantly I'm God's child. This blog is about my life including the challenges and blessings of living with cystic fibrosis, my faith, my family, and more!more
4 posts / year Apr 2014 DA 4 Get Email Contact

18. Cat Boogies Dream | L Word

Cat Boogies Dream | L Word Raleigh, North Carolina, US
I like cats, iced coffee and the color purple. I like reading, writing, making soap and thinking about what's next. I am a double lung transplant ...patient with cystic fibrosis.more
3 posts / year Mar 2010 DA 8 Get Email Contact

19. Cystic Fibrosis community

Cystic Fibrosis community Bethesda, Maryland, US
A worldwide Cystic Fibrosis community combining cultures, nationalities and age groups. The mission of the Cystic Fibrosis Foundation is to cure cysti...c fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care.more
233.8K 31.4K 7 posts / year DA 34 Get Email Contact

20. Cystic Fibrosis Federation Australia

Cystic Fibrosis Federation Australia Sydney, New South Wales, Australia
Cystic Fibrosis (CF) is the most common, genetically acquired, life-shortening chronic illness affecting young Australians today. Understand the risks..., the effects and how to best live your life.more
10.2K DA 45 Get Email Contact

21. Bennett Brinson Gamel: Fighting Cystic Fibrosis

Bennett Brinson Gamel: Fighting Cystic Fibrosis Texas, US
Cystic fibrosis is a life-threatening genetic disease that causes mucus to build up and clog some of the organs in the body, particularly the lungs an...d pancreas. When mucus clogs the lungs, it can make breathing very difficult. The thick mucus also causes bacteria (or germs) to get stuck in the airways, which causes inflammation (or swelling) and infections that lead to lung damage.more
977 Jul 2008 DA 17 Get Email Contact

22. Claire's Place Foundation

Claire's Place Foundation California, US
Claire Wineland is founder of Claire's Place Foundation, a 501c3 committed to helping others living with cystic fibrosis like herself. Our mission... is to heighten public awareness about Cystic Fibrosis and improve the quality of life for the families it affects by providing education, life skills, inspiration, and positive support.more
31.5K 21.5K 71.8K Jul 2011 DA 48 Get Email Contact

23. Cystic Fibrosis Foundation | CF community Blog

Cystic Fibrosis Foundation | CF community Blog Bethesda, Maryland, US
The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling li...ves by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care. The CF Community Blog highlights voices from across the CF community, touching on all aspects of life with cystic fibrosis.more
233.8K 31.4K 59.6K DA 66 Get Email Contact

24. Love to Breathe

Love to Breathe US
Blog by Somer Love, I created Love To Breathe® to educate and raise awareness about Cystic Fibrosis and spread Love whenever I can. I want to change ...the world... Join my fight! more
10.2K 1.6K 13.3K Mar 2008 DA 14 Get Email Contact

25. Past the Point of No Return

Past the Point of No Return A place for me to record the highs and lows of life on the transplant list, and my new life beyond it. Cystic Fibrosis waited 4years for a double lung... transplant and finally recieved the gift of life 10.10.11! All views my own.more
3.6K May 2005 DA 20 Get Email Contact

26. Cystic Fibrosis Kids

Cystic Fibrosis Kids Portsmouth, England, UK
CF Kids helps by providing equipment, such as nebulisers, which can be an essential part of a CF Kids daily routine at home, but may not be available ...because of the NHS budget. We also provide exercise equipment and lessons, plus have a number of other services we offer to families in the Portsmouth and Southampton areas. more
1.5K 257 DA 29 Get Email Contact

27. Continent Chasers

Continent Chasers Ireland
Continent Chasers Wife & Cystic Fibrosis Husband From Poland and Ireland travelling the world 84 countries. Mission is to Visit Each Country on the pl...anet and to highlight Cystic Fibrosis and to show that serious illness doesn't have to stop you following your dreams.more
2K 1.8K 1.5K DA 11 Get Email Contact

28. 66 roses

66 roses Hershey, Pennsylvania, US
Blog by Erin Moore, I'm just a mom with 3 wonderful kids, two of which are twins, one of which has Cystic Fibrosis, and I want to share my thought...s. This blog, 66 Roses, is dedicated to finding the cure. more
391 2.3K May 2010 DA 21 Get Email Contact

29. The Sprog's Life

The Sprog's Life Cobham, England, UK
Blog by George. I started this blog back in January 2012. At first i didnt want this to be a public blog, just some where i could write my thoughts an...d feelings, sort of a diary and journey through my time getting on and waiting on the transplant list.more
986 Jan 2012 DA 11 Get Email Contact

30. The Living, Breathing Wendy

The Living, Breathing Wendy Wisconsin, US
A blog about living life to the fullest despite battling Cystic Fibrosis, a genetic lung disease.
423 317 Mar 2015 DA 17 Get Email Contact

31. This is Eli

This is Eli A blog about Eli. A blog about survival - and by that, I mean life! Eli, a boy living cystic fibrosis. We are all about living and ❤️ adventure. ...I write to shed light on life with CF - and mostly, that means writing about the game of survival called life. We do our best at wellness and nutrition to keep the tribe, and Eli, as healthy as possible. more
415 DA 15 Get Email Contact

32. The Unknown Cystic

The Unknown Cystic US
Leaving a digital record for my family & virtual friends.
1.1K Feb 2010 DA 18 Get Email Contact

33. Stanley's Journey Get it off your chest CF

Stanley's Journey Get it off your chest CF Leicester, England, UK
Stanley-Ray was diagnosed with cystic fibrosis at 20 days old, this facebook page is to keep people updated on his progress & to raise funds for CF tr...ust.more
815 349 271 Sep 2016 DA 7 Get Email Contact

34. IV Solutions blogs

IV Solutions blogs US
IV Solutions is a full service cystic fibrosis pharmacy that provides home infusion treatments, respiratory inhalation therapies, and specialty CF med...ications. Since 1986, we've been there to help cystic fibrosis patients along with their families and healthcare providers. We're here to support you through individualized instruction, proactive refill reminders, on-going care coordination.more
1.8K 16 Dec 2015 DA 20 Get Email Contact

35. Lucky CF Mom | Possibilities

Lucky CF Mom | Possibilities Idaho, US
I have the most amazing good luck. 8 years ago, my world came crashing down when my newborn baby was diagnosed with the genetic disease cystic fibros...is. Today, we feel like the most fortunate family in the world because we have Kalydeco! Now my goal is to work toward more personalized research, to help bring the most effective treatment to each and every person living with CF!more
439 Feb 2011 DA 10 Get Email Contact


Jamiebug- I have Cystic Fibrosis with Cepacia...Despite being told by almost every hospital in the country that I was not a candidate for a lung trans...plant due to Cepacia- I didn't give up and I found the ONE place that took a chance on me! I am almost 3 years post transplant and I feel great! You will learn of her thoughts, feelings and how she got through each day. more
96 38 Oct 2007 DA 12 Get Email Contact

37. SaltySouthpaw.com

SaltySouthpaw.com Why am I the Salty Southpaw? Why I'm Salty - Cystic Fibrosis is a genetic disease where my body has trouble transporting salt. This causes thick m...ucus in my lungs and body, and my sweat has more salt in it than yours. Southpaw - I am a left-handed baseball player! Baseball and pitching is my passion! Check out my journey with CF.more
9 May 2005 DA 12 Get Email Contact

38. The Race Marked Out For Me | Running with Purpose

The Race Marked Out For Me | Running with Purpose I want to write about my cf journey for a bunch of reasons to Connect, Share, Spread awareness and educate, Importance of Exercise, Inspire and encour...age, Thankfulness. Embracing life's journey with cystic fibrosis.more
Mar 2015 DA 9 Get Email Contact

39. Behind the Smile of a Cystic

Behind the Smile of a Cystic My personal spin with Cystic Fibrosis tips, tricks, positive outlooks. All while making my dreams come true! 'Always Smile. I want to encourage everyo...ne with CF young or old to reach for you dreams, no matter how big or small they can be. As long as you have the right attitude in life, your disease will not bring you down! more
191 Jan 2012 DA 6 Get Email Contact

40. More Than DNA DNA doesn't define our family

More Than DNA DNA doesn't define our family Peoria, Illinois, US
Spreading Awareness about Cystic Fibrosis through sharing our experiences in life! AND finding a CURE for CF!
1.1K DA 5 Get Email Contact

41. Cystic Fibrosis Guernsey

Cystic Fibrosis Guernsey UK
Cystic Fibrosis Guernsey's aim is to give local families and carers friendly support and advice. Local families who suffer with the issues surroundin...g CF have little or no way of sharing there ups and downs, their problems, we should help each other.more
178 156 DA 13 Get Email Contact

42. Two Salty Boys

Two Salty Boys Chicago, Illinois, US
Two Salty Boys discusses the ride of a lifetime, having two boys that both have CF. You will read about the rollercoaster of life issues on this blog.... more
Nov 2010 DA 11 Get Email Contact

43. But You Look So Well

But You Look So Well Oxford, England, UK
Cystic Fibrosis blogger Helen Roper is waiting for a Double Lung Transplant. 'But You Look So Well' is the usual reply. She doesn't like writing a...bout herself in the third person! Capturing Helen Roper's journey through Cystic fibrosis whilst waiting for a double lung transplant in the UK with trademark dry humor.more
1.6K 1 post / year May 2019 DA 3 Get Email Contact

44. The Journey of Faith

The Journey of Faith US
Desiring to be more like Christ through the trials and joys of this life. On The Journey of Faith you will read about how a mom and family deal with ...the fact that they have a child with CF. You will read about the fun and happy times as well as trying times. more
Feb 2010 DA 10 Get Email Contact

45. Every Breath Means Hope

Every Breath Means Hope Sanford, North Carolina, US
This is my life... Cystic Fibrosis. Friends. Family. Music. Animals. Love. Faith. God. Miracles. Dreams. Hope.
275 Sep 2012 DA 5 Get Email Contact

46. Joyfully Breathing

Joyfully Breathing Texas, US
A CFer's Joyous Journey Through Life. I hope you enjoy reading about how I live my life as CFer! My dream job is to work with other cystic fibros...is patients as a Registered Dietitian Nutritionist (RDN) to help them gain weight so that they can live a longer, healthier life. more
Nov 2013 DA 9 Get Email Contact

47. Inhaling Hope

Inhaling Hope A blog about mothering despite Cystic Fibrosis.The owner of this blog discusses her journey through life as a wife and mother. However, she has one th...ing that increases her challenges to these things. She has CF.more
Mar 2011 DA 10 Get Email Contact

48. *Live*Laugh*Love*Breathe*

*Live*Laugh*Love*Breathe* Colleen's blog is about how she tries to incorporate Live, Love, Laugh into her daily life with CF.
Jan 2011 DA 9 Get Email Contact

49. Michael Goodwin Sailing

Michael Goodwin Sailing Hello, and welcome to my occasional blog about sailing adventures with friends. I aim to raise funds for the Cystic Fibrosis Trust through sponsorship..., so please consider making a donation to the trust via the link on this website to help us to beat this dreadful disease that limits the lives of so many young people. I do hope you enjoy reading my blog. more
16 DA 12 Get Email Contact

50. I dream of Daisy

I dream of Daisy Former civil servant Donna Sim has joined the growing trend of parent bloggers. She takes you on a journery sharing inspirational moments, as well as... personal accounts written with a heavy heart about her life battling Cystic Fibrosis and her struggles to conceive her miracle baby Daisy.more
217 59 146 Jun 2013 DA 8 Get Email Contact

51. One Breath at a Time - Living with Cystic Fibrosis

One Breath at a Time - Living with Cystic Fibrosis A lot of people ask me what made me decide to start writing a blog. I first got the idea after finding out that I might need a transplant. This blog i...s to raise awareness too, and that has been the biggest blessing I could have asked for. I have people reading my blog and learning about what Cystic Fibrosis is. more
Jan 2011 DA 10 Get Email Contact

52. The So What Life

The So What Life US
A blog to inspire members of the CF community to live positively and embrace everything life has to offer. Thriving with a chronic illness, cystic fib...rosis.more
1.3K DA 11 Get Email Contact

53. Illness Inspired Words

Illness Inspired Words Oregon, US
The one thing that many don't realize about Cystic Fibrosis is how isolating it can be. We are discouraged to spend any quality time together unle...ss we abide by strict infection control protocols. With that being said, many CF'ers and their families have sort of decided to stay away for one another in a best practices effort to not cross contaminate. more
Jul 2009 DA 8 Get Email Contact

54. Always Have Hope

Always Have Hope Following my life with Cystic fibrosis.
Sep 2014 DA 8 Get Email Contact

55. Tales of Citrus and Salt

Tales of Citrus and Salt When Life Gives you Lemon is published by a mom of a little guy that has CF. You will read about her daily life as well as how to care for a child wit...h CF. more
Aug 2013 DA 6 Get Email Contact

56. The Transplanted Dad

The Transplanted Dad US
My life as a father and husband with Cystic Fibrosis and two donated lungs. Here I will share the story of my life with Cystic Fibrosis and the new di...rection it's headed in following my double lung transplantmore
133 Apr 2015 DA 8 Get Email Contact

57. With Every Breath: My Life with Cystic Fibrosis

With Every Breath: My Life with Cystic Fibrosis US
Once you choose hope, anything's possible. it's also a good way for me to connect with others in the CF community. Others in my situation may find it... comforting to see they aren't alone. Blog by jordan.more
Oct 2013 DA 8 Get Email Contact

58. Blue-Eyed Breather

Blue-Eyed Breather Blue Eyed Breather is a blog about a young lady who strives to live a normal life. Emily blogs about the good and the not so good in her life and abo...ut her walk with God.more
Jan 2012 DA 4 Get Email Contact

59. CF Is Not Forever

CF Is Not Forever Cystic Fibrosis is part of our family now on Earth, but we know that Cystic Fibrosis is not forever, but our family is!
Mar 2015 DA 3 Get Email Contact

60. The Salty Cyster

The Salty Cyster Life with Cystic Fibrosis and other random thoughts along the way.
Apr 2015 DA 4 Get Email Contact

61. Becoming Chayil

Becoming Chayil Chayil is a beautiful Hebrew word that translates to strength, courage, and virtue, especially in the face of adversity, borne of closeness to and dep...endence on our Heavenly Father. My story, found throughout the pages of this blog, is one of redemption, forgiveness, and our Father's incomprehensible, incredible love. My story is my own, but chances are if you're reading this now, it's yours too... Or you want it to be. And it can! I created She is Chayil not only for myself but in hopes of using my storms to uplift and encourage others who might be going through similar things.more
Jan 2015 DA 6 Get Email Contact

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Cystic Fibrosis Bloggers

Top Authors, Journalists, and Publishers covering Cystic Fibrosis. Get Spreadsheet
Blogger Name Email Blog Link Total Blog Posts
Marisa Wexler cysticfibrosisnewstoday.com 20
Lindsey Shapiro cysticfibrosisnewstoday.com 13
Margarida Maia cysticfibrosisnewstoday.com 12
Cystic Fibrosis Canada cysticfibrosis.ca 11
Steve Bryson cysticfibrosisnewstoday.com 11
William Ryan cysticfibrosisnewstoday.com 9
Lara Govendo cysticfibrosisnewstoday.com 7
Patricia Inácio cysticfibrosisnewstoday.com 5
Andrea Lobo cysticfibrosisnewstoday.com 4
Jennifer Chamberlain cysticfibrosisnewstoday.com 4
Jennifer Bleecher cysticfibrosisnewstoday.com 3
A. Downes cysticfibrosisjournal.com 3
Brad Dell cysticfibrosisnewstoday.com 2
author1 cysticfibrosis.ca 1
Tim Wotton timwotton.wordpress.com 1
Kristin Entler cysticfibrosisnewstoday.com 1
Mary Chapman cysticfibrosisnewstoday.com 1
Betsy bvbrighthope.wordpress.com 1
A. Anderson cysticfibrosisjournal.com 1
A. Morales Tirado cysticfibrosisjournal.com 1
A. Murabito cysticfibrosisjournal.com 1
A. Serpico cysticfibrosisjournal.com 1
A. Vukić Dugac cysticfibrosisjournal.com 1
A. Williams cysticfibrosisjournal.com 1
A.M. Murphy cysticfibrosisjournal.com 1
A.P. Ergenekon cysticfibrosisjournal.com 1
Anna Bertolini cysticfibrosisjournal.com 1
Annalisa Orenti cysticfibrosisjournal.com 1
AR Deschamp cysticfibrosisjournal.com 1
B. Button cysticfibrosisjournal.com 1
C. Crisan cysticfibrosisjournal.com 1
C. Fevola cysticfibrosisjournal.com 1
C. L’Hostis cysticfibrosisjournal.com 1
C. McLaughlin cysticfibrosisjournal.com 1
C. Rosazza cysticfibrosisjournal.com 1
C. Short cysticfibrosisjournal.com 1
C.M. Sloan cysticfibrosisjournal.com 1
Carlo Castellani cysticfibrosisjournal.com 1
Christina S. Thornton cysticfibrosisjournal.com 1
Cian Greaney cysticfibrosisjournal.com 1
D. Li cysticfibrosisjournal.com 1
D. Ravamehr-Lake cysticfibrosisjournal.com 1
D. Sanders cysticfibrosisjournal.com 1
Daniel H Tewkesbury cysticfibrosisjournal.com 1
Dervla T.D. Kenna cysticfibrosisjournal.com 1
Do-Yeon Cho cysticfibrosisjournal.com 1
E De Wachter cysticfibrosisjournal.com 1
E. Autry cysticfibrosisjournal.com 1
E. Bardin cysticfibrosisjournal.com 1
E. Bowman cysticfibrosisjournal.com 1
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