70 Best Cystic Fibrosis Blogs and Websites

1. Cystic Fibrosis News Today

Cystic Fibrosis News Today is a digital news publication dedicated to offering comprehensive daily news coverage of CF. Read the latest Cystic Fibrosi...s news and articles. Stay informed about approved therapies, new medications and developments to treat CF.more
cysticfibrosisnews..
Facebook 22.7KTwitter 5.2KInstagram 7.8K Frequency 6 posts / week Since Apr 2014 FeedSpot 412 Posts 2311 DA 51 Location US Get Email Contact

2. CF Roundtable A Newsletter for Adults with Cystic Fibrosis

The purpose of USACFA is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the l...atest treatments and research to fight it. It also offers a forum for CF adults to communicate with each other. Our many columnists provide insights on a wide variety of subjects related to CF.more
cfroundtable.com/b..
Facebook 2.3KTwitter 980 Frequency 1 post / month Since Mar 2011 FeedSpot 228 Posts 306 DA 28 Location US Get Email Contact

3. Cystic Fibrosis community

A worldwide Cystic Fibrosis community combining cultures, nationalities and age groups. The mission of the Cystic Fibrosis Foundation is to cure cysti...c fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care.more
cysticfibrosis.com..
Facebook 233.8KTwitter 31.5K Frequency 1 post / month FeedSpot 186 Posts 92 DA 34 Location US Get Email Contact

4. Cystic Fibrosis Canada

Cystic Fibrosis Canada is a national charitable not-for-profit corporation committed to finding a cure for cystic fibrosis (CF). We invest more in lif...e-saving CF research and care than any other non-governmental agency in Canada.more
cysticfibrosis.ca/..
Facebook 19.1KTwitter 6.4KInstagram 4.7K Frequency 2 posts / week Since Apr 2016 FeedSpot 166 Posts 350 DA 53 Location Canada Get Email Contact

5. Journal of Cystic Fibrosis

The Journal of Cystic Fibrosis is the official journal of the European Cystic Fibrosis Society. The journal is devoted to promoting the research and t...reatment of cystic fibrosis. To this end the journal publishes original scientific articles, editorials, case reports, short communications and other information relevant to cystic fibrosis. more
cysticfibrosisjour..
Frequency 2 posts / week FeedSpot 104 Posts 1814 DA 35 Get Email Contact

6. Emily's Entourage Blog

Emily's Entourage is a nonprofit organization that raises money and awareness to help find a cure for rare mutations of cystic fibrosis, a genetic dis...order that generally affects a person's lungs and digestive system. Our goal is to expedite life-saving treatments and a cure for those with nonsense mutations of CF who are waiting with bated and fading breath.more
emilysentourage.or..
Facebook 9.4KTwitter 2K Frequency 1 post / month FeedSpot 50 Posts 52 DA 40 Location US Get Email Contact

7. Living life breathlessly

Life is not measured by the number of breaths we take, but by the moments that take our breath away.
livinglifebreathle..
Twitter 1 Frequency 1 post / year Since Dec 2007 FeedSpot 193 Posts 121 DA 18 Location South Africa Get Email Contact

8. Cystic Fibrosis New Zealand | Creating Better Tomorrows

Cystic Fibrosis New Zealand is the only dedicated organisation caring for the social, emotional and financial needs of the 500 people in NZ who have t...he condition. CFANZ will optimise quality of life for people with cystic fibrosis and their families; striving for normal life expectancy.more
cfnz.org.nz
Facebook 5.5K Frequency 3 posts / quarter FeedSpot 87 Posts 89 DA 33 Location New Zealand Get Email Contact

9. Cody Dieruf Benefit Foundation | Life with Cystic Fibrosis

The Cody Dieruf Benefit Foundation was formed in March of 2006 in honor of Cody Dieruf who passed away from Cystic Fibrosis at 23 years old. Uniting c...ommunities and families living with Cystic Fibrosis by raising awareness, providing emotional and financial assistance, encouraging health management, and inspiring life experiences.more
breathinisbelievin..
Facebook 2.1KTwitter 7 Frequency 1 post / month FeedSpot 138 Posts 163 DA 19 Location US Get Email Contact

10. CF Happens

I am a military wife, bonus mom and happen to have Cystic Fibrosis (CF).I am not a medical expert and this is just my story.
cfhappens.com
Twitter 32 Frequency 2 posts / quarter Since Oct 2013 FeedSpot 93 Posts 107 DA 6 Location US Get Email Contact

11. Joyfully Breathing

A CFer's Joyous Journey Through Life. I hope you enjoy reading about how I live my life as CFer! My dream job is to work with other cystic fibros...is patients as a Registered Dietitian Nutritionist (RDN) to help them gain weight so that they can live a longer, healthier life. more
joyfullybreathing...
Frequency 1 post / month Since Nov 2013 FeedSpot 40 Posts 29 DA 9 Location US Get Email Contact

12. Bright Hope

Strength for today and BRIGHT HOPE for tomorrow! I am a 39-year-old woman with cystic fibrosis. I am also a daugher, sister, wife, mother, teacher and... friend. Most importantly I'm God's child. This blog is about my life including the challenges and blessings of living with cystic fibrosis, my faith, my family, and more!more
bvbrighthope.wordp..
Frequency 1 post / week Since Apr 2014 FeedSpot 39 Posts 43 DA 4 Get Email Contact

13. The Frey Life

We are daily vloggers on Youtube sharing this crazy journey called life with all of you. Laugh with us. Cry with us. See the world with us. Get a glim...pse of life with Cystic Fibrosis. Be encouraged as you watch our videos... we hope they make your smile and and bring joy to your day. Welcome to THE FREY LIFE!more
youtube.com/cha..
Facebook 112.1KTwitter 7.2K Frequency 3 posts / week Since Mar 2014 FeedSpot 151 Posts 1720 Location US Get Email Contact

14. Cystic Fibrosis Trust

The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimited by cystic fibrosis (CF) for everyone affected by the ...condition. Our mission is to create a world where being born with CF no longer carries a death sentence, when everyone living with the condition will be able to look forward to a long, healthy life. more
youtube.com/cha..
Facebook 88.5KTwitter 27.9K Frequency 4 posts / quarter Since Oct 2008 FeedSpot 127 Posts 178 Location UK Get Email Contact

15. Cystic Fibrosis Foundation | CF community Blog

The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling li...ves by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care. The CF Community Blog highlights voices from across the CF community, touching on all aspects of life with cystic fibrosis.more
cff.org/Blog
Facebook 233.8KTwitter 31.5K Frequency 3 posts / year FeedSpot 52 Posts 92 DA 66 Location US Get Email Contact

16. Claire's Place Foundation

Claire Wineland is founder of Claire's Place Foundation, a 501c3 committed to helping others living with cystic fibrosis like herself. Our mission... is to heighten public awareness about Cystic Fibrosis and improve the quality of life for the families it affects by providing education, life skills, inspiration, and positive support.more
clairesplacefounda..
Facebook 31.6KTwitter 21.8KInstagram 74K Since Jul 2011 FeedSpot 105 Posts 80 DA 48 Location US Get Email Contact

17. Cystic Fibrosis Federation Australia

Cystic Fibrosis (CF) is the most common, genetically acquired, life-shortening chronic illness affecting young Australians today. Understand the risks..., the effects and how to best live your life.more
cysticfibrosis.org.au
Facebook 10.2K FeedSpot 155 Posts 30 DA 45 Location Australia Get Email Contact

18. Bennett Brinson Gamel: Fighting Cystic Fibrosis

Cystic fibrosis is a life-threatening genetic disease that causes mucus to build up and clog some of the organs in the body, particularly the lungs an...d pancreas. When mucus clogs the lungs, it can make breathing very difficult. The thick mucus also causes bacteria (or germs) to get stuck in the airways, which causes inflammation (or swelling) and infections that lead to lung damage.more
initforbennett.com
Twitter 978 Since Jul 2008 FeedSpot 160 Posts 58 DA 17 Location US Get Email Contact

19. Love to Breathe

Blog by Somer Love, I created Love To Breathe® to educate and raise awareness about Cystic Fibrosis and spread Love whenever I can. I want to change ...the world... Join my fight! more
lovetobreathe.blog..
Facebook 10.2KTwitter 1.7KInstagram 13.1K Since Mar 2008 FeedSpot 112 Posts 33 DA 14 Location US Get Email Contact

20. Past the Point of No Return

A place for me to record the highs and lows of life on the transplant list, and my new life beyond it. Cystic Fibrosis waited 4years for a double lung... transplant and finally recieved the gift of life 10.10.11! All views my own.more
tor-pastthepointof..
Twitter 3.6K Since May 2005 FeedSpot 135 Posts 100 DA 20 Get Email Contact

21. Cystic Fibrosis Kids

CF Kids helps by providing equipment, such as nebulisers, which can be an essential part of a CF Kids daily routine at home, but may not be available ...because of the NHS budget. We also provide exercise equipment and lessons, plus have a number of other services we offer to families in the Portsmouth and Southampton areas. more
cfkids.org.uk
Facebook 1.5KInstagram 248 FeedSpot 82 Posts 27 DA 29 Location UK Get Email Contact

22. Continent Chasers

Continent Chasers Wife & Cystic Fibrosis Husband From Poland and Ireland travelling the world 84 countries. Mission is to Visit Each Country on the pl...anet and to highlight Cystic Fibrosis and to show that serious illness doesn't have to stop you following your dreams.more
continentchasers.c..
Facebook 2KTwitter 1.9KInstagram 1.6K FeedSpot 156 Posts 64 DA 11 Location Ireland Get Email Contact

23. 66 roses

Blog by Erin Moore, I'm just a mom with 3 wonderful kids, two of which are twins, one of which has Cystic Fibrosis, and I want to share my thought...s. This blog, 66 Roses, is dedicated to finding the cure. more
66roses.blogspot.com
Facebook 391Twitter 2.3K Since May 2010 FeedSpot 144 Posts 50 DA 21 Location US Get Email Contact

24. The Sprog's Life

Blog by George. I started this blog back in January 2012. At first i didnt want this to be a public blog, just some where i could write my thoughts an...d feelings, sort of a diary and journey through my time getting on and waiting on the transplant list.more
thesprogslife.com
Twitter 994 Since Jan 2012 FeedSpot 90 Posts 60 DA 11 Location UK Get Email Contact

25. Inspire; to breathe

Blog by Suzanne. Blogging about home, life, living with Cystic Fibrosis, gardening, general love for all things vintage, and reasons why those topics ...are more interesting than they sound.more
suzannebrandsen.wo..
Instagram 588 Since Jul 2010 FeedSpot 34 Posts 21 DA 16 Get Email Contact

26. The Living, Breathing Wendy

A blog about living life to the fullest despite battling Cystic Fibrosis, a genetic lung disease.
thelivingbreathing..
Facebook 423Twitter 320 Since Mar 2015 FeedSpot 47 Posts 49 DA 17 Location US Get Email Contact

27. This is Eli

A blog about Eli. A blog about survival - and by that, I mean life! Eli, a boy living cystic fibrosis. We are all about living and ❤️ adventure. ...I write to shed light on life with CF - and mostly, that means writing about the game of survival called life. We do our best at wellness and nutrition to keep the tribe, and Eli, as healthy as possible. more
hithisiseli.com
Twitter 418 FeedSpot 85 Posts 21 DA 15 Get Email Contact

28. The Unknown Cystic

Leaving a digital record for my family & virtual friends.
unknowncystic.com
Twitter 1.1K Since Feb 2010 FeedSpot 93 Posts 12 DA 18 Location US Get Email Contact

29. Tim Wotton | Counting up to 50

Tim Wotton, a Cystic Fibrosis sufferer, has been defying the odds for over 43 years and is sharing his life lessons and experiences. After counting do...wn to the massive 40 milestone in 2011, he is now regularly sharing his trials and tribulations via this blog.more
timwotton.wordpres..
Twitter 874 Frequency 2 posts / quarter Since Jan 2011 FeedSpot 55 Posts 32 DA 19 Location UK Get Email Contact

30. Stanley's Journey Get it off your chest CF

Stanley-Ray was diagnosed with cystic fibrosis at 20 days old, this facebook page is to keep people updated on his progress & to raise funds for CF tr...ust.more
getitoffyourchestc..
Facebook 812Twitter 352Instagram 322 Since Sep 2016 FeedSpot 111 Posts 27 DA 7 Location UK Get Email Contact

31. IV Solutions blogs

IV Solutions is a full service cystic fibrosis pharmacy that provides home infusion treatments, respiratory inhalation therapies, and specialty CF med...ications. Since 1986, we've been there to help cystic fibrosis patients along with their families and healthcare providers. We're here to support you through individualized instruction, proactive refill reminders, on-going care coordination.more
ivsolutions.com/blog
Facebook 1.8KTwitter 16 Since Dec 2015 FeedSpot 112 Posts 22 DA 20 Location US Get Email Contact

32. Lucky CF Mom | Possibilities

I have the most amazing good luck. 8 years ago, my world came crashing down when my newborn baby was diagnosed with the genetic disease cystic fibros...is. Today, we feel like the most fortunate family in the world because we have Kalydeco! Now my goal is to work toward more personalized research, to help bring the most effective treatment to each and every person living with CF!more
luckycfmom.blogspo..
Twitter 443 Since Feb 2011 FeedSpot 51 Posts 67 DA 10 Location US Get Email Contact

33. JAMIEBUG CF CEPACIA LUNG TRANSPLANT

Jamiebug- I have Cystic Fibrosis with Cepacia...Despite being told by almost every hospital in the country that I was not a candidate for a lung trans...plant due to Cepacia- I didn't give up and I found the ONE place that took a chance on me! I am almost 3 years post transplant and I feel great! You will learn of her thoughts, feelings and how she got through each day. more
jamiebug.blogspot.com
Facebook 96Twitter 38 Since Oct 2007 FeedSpot 164 Posts 28 DA 12 Location US Get Email Contact

34. CF Stinks

Having CF Stinks, but that doesn't stop me! I'll share with you a little about myself, my life with Cystic Fibrosis and anything else that cr...osses my mind. more
cfstinks.com
Facebook 210 Frequency 3 posts / year Since Dec 2010 FeedSpot 96 Posts 79 DA 5 Location US Get Email Contact

35. SaltySouthpaw.com

Why am I the Salty Southpaw? Why I'm Salty - Cystic Fibrosis is a genetic disease where my body has trouble transporting salt. This causes thick m...ucus in my lungs and body, and my sweat has more salt in it than yours. Southpaw - I am a left-handed baseball player! Baseball and pitching is my passion! Check out my journey with CF.more
saltysouthpaw.com
Twitter 9 Since May 2005 FeedSpot 44 Posts 143 DA 12 Get Email Contact

36. TheraPink

I created this blog to raise awareness about CF through sharing my personal experiences and perspective. I hope to dispel some of the myths and provid...e a basic education on my experiences with Cystic Fibrosis. Blog by Therapink.more
therapink.wordpres..
Twitter 1 Frequency 1 post / year Since Jan 2013 FeedSpot 34 Posts 47 DA 16 Location US Get Email Contact

37. The Race Marked Out For Me | Running with Purpose

I want to write about my cf journey for a bunch of reasons to Connect, Share, Spread awareness and educate, Importance of Exercise, Inspire and encour...age, Thankfulness. Embracing life's journey with cystic fibrosis.more
theracemarkedoutfo..
Since Mar 2015 FeedSpot 40 Posts 88 DA 9 Get Email Contact

38. Breathe Bravely

A blog about my beautiful life living with Cystic Fibrosis: to educate and help promote awareness and understanding associated with CF.Dedicated to sh...aring my experiences of the good, the bad, the ugly, and the funny, so that all who so eagerly support the fight against CF, will know how much their love and support truly means.more
breathebravely.blo..
Twitter 237 Since Apr 2014 FeedSpot 139 Posts 93 DA 18 Location US Get Email Contact

39. Amy Labonte | Now is the Winter of Our Discontent

A mom, her CF warrior, and our journey through life, love and hardships. Striving for a cure, trying to raise awareness.
amylabonte.blogspo..
Facebook 693Twitter 708 Since Oct 2012 FeedSpot 82 Posts 39 DA 3 Location US Get Email Contact

40. Behind the Smile of a Cystic

My personal spin with Cystic Fibrosis tips, tricks, positive outlooks. All while making my dreams come true! 'Always Smile. I want to encourage everyo...ne with CF young or old to reach for you dreams, no matter how big or small they can be. As long as you have the right attitude in life, your disease will not bring you down! more
behindthesmileofac..
Twitter 191 Since Jan 2012 FeedSpot 158 Posts 75 DA 6 Get Email Contact

41. More Than DNA DNA doesn't define our family

Spreading Awareness about Cystic Fibrosis through sharing our experiences in life! AND finding a CURE for CF!
morethandna.org
Facebook 1.1K FeedSpot 133 Posts 31 DA 5 Location US Get Email Contact

42. Cystic Fibrosis Guernsey

Cystic Fibrosis Guernsey's aim is to give local families and carers friendly support and advice. Local families who suffer with the issues surroundin...g CF have little or no way of sharing there ups and downs, their problems, we should help each other.more
cysticfibrosis.org..
Facebook 178Twitter 156 FeedSpot 93 Posts 24 DA 13 Location UK Get Email Contact

43. Two Salty Boys

Two Salty Boys discusses the ride of a lifetime, having two boys that both have CF. You will read about the rollercoaster of life issues on this blog.... more
twosaltyboys.blogs..
Since Nov 2010 FeedSpot 94 Posts 31 DA 11 Location US Get Email Contact

44. The Journey of Faith

Desiring to be more like Christ through the trials and joys of this life. On The Journey of Faith you will read about how a mom and family deal with ...the fact that they have a child with CF. You will read about the fun and happy times as well as trying times. more
heleadsus.wordpres..
Since Feb 2010 FeedSpot 91 Posts 42 DA 10 Location US Get Email Contact

45. But You Look So Well

Cystic Fibrosis blogger Helen Roper is waiting for a Double Lung Transplant. 'But You Look So Well' is the usual reply. She doesn't like writing a...bout herself in the third person! Capturing Helen Roper's journey through Cystic fibrosis whilst waiting for a double lung transplant in the UK with trademark dry humor.more
butyoulooksowell.com
Frequency 1 post / quarter Since May 2019 FeedSpot 3 Posts 12 DA 3 Location UK Get Email Contact

46. Every Breath Means Hope

This is my life... Cystic Fibrosis. Friends. Family. Music. Animals. Love. Faith. God. Miracles. Dreams. Hope.
everybreathmeansho..
Twitter 275 Since Sep 2012 FeedSpot 41 Posts 26 DA 5 Location US Get Email Contact

47. *Live*Laugh*Love*Breathe*

Colleen's blog is about how she tries to incorporate Live, Love, Laugh into her daily life with CF.
howilivelaughlovew..
Since Jan 2011 FeedSpot 94 Posts 64 DA 9 Get Email Contact

48. Inhaling Hope

A blog about mothering despite Cystic Fibrosis.The owner of this blog discusses her journey through life as a wife and mother. However, she has one th...ing that increases her challenges to these things. She has CF.more
hopefulwithcf.blog..
Since Mar 2011 FeedSpot 94 Posts 73 DA 10 Get Email Contact

49. Michael Goodwin Sailing

Hello, and welcome to my occasional blog about sailing adventures with friends. I aim to raise funds for the Cystic Fibrosis Trust through sponsorship..., so please consider making a donation to the trust via the link on this website to help us to beat this dreadful disease that limits the lives of so many young people. I do hope you enjoy reading my blog. more
michaelgoodwinsail..
Twitter 16 FeedSpot 32 Posts 9 DA 12 Get Email Contact

50. I dream of Daisy

Former civil servant Donna Sim has joined the growing trend of parent bloggers. She takes you on a journery sharing inspirational moments, as well as... personal accounts written with a heavy heart about her life battling Cystic Fibrosis and her struggles to conceive her miracle baby Daisy.more
dream-of-daisy.blo..
Facebook 217Twitter 59Instagram 146 Since Jun 2013 FeedSpot 94 Posts 51 DA 8 Get Email Contact

51. The So What Life

A blog to inspire members of the CF community to live positively and embrace everything life has to offer. Thriving with a chronic illness, cystic fib...rosis.more
thesowhatlife.com/..
Facebook 1.3K FeedSpot 136 Posts 31 DA 11 Location US Get Email Contact

52. One Breath at a Time - Living with Cystic Fibrosis

A lot of people ask me what made me decide to start writing a blog. I first got the idea after finding out that I might need a transplant. This blog i...s to raise awareness too, and that has been the biggest blessing I could have asked for. I have people reading my blog and learning about what Cystic Fibrosis is. more
kayla-onebreath.bl..
Since Jan 2011 FeedSpot 97 Posts 31 DA 10 Get Email Contact

53. Illness Inspired Words

The one thing that many don't realize about Cystic Fibrosis is how isolating it can be. We are discouraged to spend any quality time together unle...ss we abide by strict infection control protocols. With that being said, many CF'ers and their families have sort of decided to stay away for one another in a best practices effort to not cross contaminate. more
illnessinspiredwor..
Since Jul 2009 FeedSpot 92 Posts 51 DA 8 Location US Get Email Contact

54. Cat Boogies Dream | L Word

I like cats, iced coffee and the color purple. I like reading, writing, making soap and thinking about what's next. I am a double lung transplant ...patient with cystic fibrosis.more
catboogiesdream.bl..
Since Mar 2010 FeedSpot 32 Posts 59 DA 8 Location US Get Email Contact

55. Always Have Hope

Following my life with Cystic fibrosis.
hollyrosanna.blogs..
Since Sep 2014 FeedSpot 91 Posts 68 DA 8 Get Email Contact

56. The Transplanted Dad

My life as a father and husband with Cystic Fibrosis and two donated lungs. Here I will share the story of my life with Cystic Fibrosis and the new di...rection it's headed in following my double lung transplantmore
transplanteddad.bl..
Facebook 133 Since Apr 2015 FeedSpot 34 Posts 25 DA 8 Location US Get Email Contact

57. With Every Breath: My Life with Cystic Fibrosis

Once you choose hope, anything's possible. it's also a good way for me to connect with others in the CF community. Others in my situation may find it... comforting to see they aren't alone. Blog by jordan.more
livewitheverybreat..
Since Oct 2013 FeedSpot 128 Posts 20 DA 8 Location US Get Email Contact

58. Tales of Citrus and Salt

When Life Gives you Lemon is published by a mom of a little guy that has CF. You will read about her daily life as well as how to care for a child wit...h CF. more
teamddoes.blogspot..
Since Aug 2013 FeedSpot 145 Posts 199 DA 6 Get Email Contact

59. Blue-Eyed Breather

Blue Eyed Breather is a blog about a young lady who strives to live a normal life. Emily blogs about the good and the not so good in her life and abo...ut her walk with God.more
blue-eyedbreather...
Since Jan 2012 FeedSpot 92 Posts 32 DA 4 Get Email Contact

60. CF Is Not Forever

Cystic Fibrosis is part of our family now on Earth, but we know that Cystic Fibrosis is not forever, but our family is!
cfisnotforever.blo..
Since Mar 2015 FeedSpot 40 Posts 36 DA 3 Get Email Contact

61. The Salty Cyster

Life with Cystic Fibrosis and other random thoughts along the way.
thesaltycyster.blo..
Since Apr 2015 FeedSpot 33 Posts 50 DA 4 Get Email Contact

62. Becoming Chayil

Chayil is a beautiful Hebrew word that translates to strength, courage, and virtue, especially in the face of adversity, borne of closeness to and dep...endence on our Heavenly Father. My story, found throughout the pages of this blog, is one of redemption, forgiveness, and our Father's incomprehensible, incredible love. My story is my own, but chances are if you're reading this now, it's yours too... Or you want it to be. And it can! I created She is Chayil not only for myself but in hopes of using my storms to uplift and encourage others who might be going through similar things.more
becomingchayil.com..
Since Jan 2015 FeedSpot 93 Posts 48 DA 6 Get Email Contact

Show 63 to 150