20 Best Congenital Disorders Podcasts

1. Portland Roots Media

Portland, Ohio, US
I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called USP7. She's different. And now, so is... everything else. #USP7 #autismmore
portlandrootsmedia..
223 261 1 episode / week Jan 2015
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2. Heart to Heart with Anna

Temple, Texas, US
'Heart to Heart with Anna' is the longest-running podcast devoted to the congenital heart defect (CHD) community. Our shows feature Survivors, family ...members, medical professionals and others in the CHD community who wish to share their stories, expertise, and advice. This show is devoted to empowering, educating and enriching the lives of members of the CHD community.more
spreaker.com/show/..
2.2K 843 1 episode / week Avg Length 30 min Sep 2014
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3. The CFRI CF Community Voices Podcast

Palo Alto, California, US
CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.
cfri.podbean.com
11K 1.9K 1 episode / week Avg Length 32 min May 2018
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4. The Lucky Few Podcast

Hosted by Heather Avis, Micha Boyett, and Mercedes Lara, The Lucky Few Podcast works to change the narrative about Down Syndrome, shout the worth of o...ur children and share the beautiful journey that is raising a person with Down Syndrome.more
theluckyfewpodcast..
1.3K 353 5.6K 1 episode / week Mar 2018
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5. Down Syndrome Center of Western Pennsylvania Podcast

Pennsylvania, US
This is the podcast series for the Down Syndrome Center of Western Pennsylvania at Children's Hospital of Pittsburgh of UPMC.
downsyndromecenter..
87.9K 32.9K 3 episodes / month Avg Length 24 min Feb 2013
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6. T21Mom Podcast

A family podcast about Down syndrome, single parenting, special needs, and pretty much everything in between.
t21mom.com/categor..
835 286 110 3 episodes / quarter Avg Length 52 min May 2019
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7. If We Knew Then

Los Angeles, California, US
We are Stephen and Lori Saux and welcome to the If We Knew Then Podcast. Well this podcast aims to share honest and useful conversations about support...s, therapies, education and society as it pertains to Down Syndrome advocacy and parenting.more
ifweknewthen.podbe..
3.2K 1.3K 1 episode / week Avg Length 49 min Apr 2020
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8. The Rare Life

Utah, US
Curated by a fellow special needs mom in the trenches, The Rare Life features Madeline's own experiences and takeaways as she parents her son Kimb...all who was born with several major birth defects due to his extremely rare genetic disorder, as well as conversations with other parents who share their own advice and stories of loving a child with medical complexities.more
therarelifepodcast..
1.1K 1 episode / day Avg Length 55 min
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9. Talk Fragile X

Virginia, US
Talk Fragile X Podcast consists of a group of Mom's of FX Children, Self-Advocates, and Full-Mutation carriers from the Northwest Region! We'r...e all on a mission to use this podcast platform to reach as many FX families as possible, create more awareness of FX, and provide helpful resources and support. Even if you don't know what Fragile X Syndrome is, this Podcast is still for you! We want everyone to know what Fragile X is and understand its genetic prevalence in individuals lives.more
anchor.fm/talkfx
16.2K 2.8K 1 episode / week Avg Length 32 min May 2020
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10. Living With Cystic Fibrosis

Detroit, Michigan, US
Living With Cystic Fibrosis podcast by Bonnell Foundation with the challenges and triumphs along the way.
thebonnellfoundati..
448 1.7K 1 episode / month Avg Length 37 min Feb 2019
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11. The LowDOWN | A Down Syndrome Podcast

Burnaby, British Columbia, Canada
The LowDOWN: A Down Syndrome Podcast brings a professional perspective on issues facing individuals with Down syndrome and their loved ones. Hosts Mar...la Folden and Hina Mahmood of the Down Syndrome Resource Foundation welcome North America's leading Down syndrome experts, parents and self-advocates to cover topics from across the lifespan including health, physical and intellectual development, advocacy, employment and much more.more
buzzsprout.com/862549
13.2K 3.4K 1 episode / week Avg Length 61 min Apr 2020
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12. TALK Down Syndrome

TALK Down Syndrome is a podcast created to show the world how Down Syndrome is truly amazing. Our goal is to inspire others through stories and interv...iews about Down syndrome and to advocate the importance of fair laws for our loved ones with Down syndrome!more
anchor.fm/talkdown..
1 episode / quarter Avg Length 48 min May 2020
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13. Gettindownwithdownsyndrome's Podcast

Beth Parillon is a life coach with Ocean Organics Wellness & Coaching will discuss all things as they relate to down syndrome. I will share my persona...l stories, insights, my successes, and my epic failures of raising my daughter with down syndrome. I will help guide you through this new journey of raising your child with down syndrome. Are you ready to get down?more
gettindownwithdown..
1 episode / week Avg Length 24 min Jan 2021
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14. Disorderly Blondes Autism Podcast

Florida, US
South Florida moms, Brenda and Kristi, candidly discuss MOTHERHOOD and AUTISM while balancing heels, cocktails, and meltdowns. They share the challeng...es and triumphs that define the parenting journey of their own special needs sons (autism spectrum disorder CHRNA7 genetic duplication). Together, they provide community support and a lifeline to parents of newly diagnosed children, teens, and adults. Guests bring essential professional information to educate and empower families.more
disorderlyblondes...
669 170 892 4 episodes / year Nov 2018
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15. Heart2Hearts

Each episode will be a discussion with a person who has a Congenital Heart Defect (CHD) and about their journey with a CHD and how they have coped wit...h the Covid19 pandemic.Instagram: heart2heartspodcastMusic used by permission by Leon Dietsch https://soundcloud.com/leon-laser-pew-pewmore
anchor.fm/heart2he..
1 episode / week Avg Length 48 min Feb 2021
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16. The Shifting Perspectives Podcast

London, England, UK
The Shifting Perspectives Podcast brought to you by the Down's Syndrome Association and hosted by Richard Bailey, photographer, and curator of the... Shifting Perspective project. It tells the stories of people who have Down's syndrome as well as of their families and carers, raising a smile, providing insights and challenging commonly held attitudes and prejudices.more
audioboom.com/chan..
224.4K 22K 5 episodes / year Avg Length 21 min Mar 2019
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17. Good Things in Life podcast

Ontario, Canada
Join Genia in discussion with other parents, thought leaders, and visionaries about helping young children with intellectual disabilities get the good... things in life. Join the conversation. Good things in life are for families with a vision about what is possible and how to achieve it. Whether your child has cerebral palsy, down syndrome, angelman syndrome, autism, or a mild learning disability, the Good Things in Life podcast can help you figure out how to take action to protect your child from harm and work towards a good life.more
goodthingsinlife.o..
1.9K 200 14 episodes / year Avg Length 58 min Oct 2018
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18. Down Right Designed

Podcast highlighting the life of Anna Sasser, a young adult with Down syndrome. She participates in discussions about her adventures, challenges, hope...s, dreams, and life in general.more
buzzsprout.com/949957
1.2K 2 episodes / quarter Avg Length 27 min Feb 2020
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