20 Best Ataxia Blogs & Websites

1. Ataxia UK Blog

Ataxia UK is the national charity for everyone affected by ataxia. We have been running for over forty years. Our mission is to support people affecte...d by ataxia with research, information, welfare grants, campaigning and the opportunity to meet and help others in the same position.more
ataxia.org.uk
Facebook 8.4KTwitter 4.5K Frequency 1 post / day FeedSpot 61 Posts 369 DA 46 Location UK Get Email Contact

2. FARA - Scientific News

FARA's Mission is to marshal and focus the resources and relationships needed to cure FA by raising funds for research, promoting public awareness..., and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases.more
curefa.org/scienti..
Facebook 13.5KTwitter 2.6K Frequency 5 posts / month FeedSpot 93 Posts 601 DA 51 Location US Get Email Contact

3. Friedreich's Ataxia News

At Friedreich's Ataxia News, we strive to bring to light the latest science and research pertaining to FA so that patients and their families can ...access and understand it. Our editorial staff scours clinical trials.gov, PubMed, and other sources to pick up on the most recent FA studies and present their findings in a way that patients can understand.more
friedreichsataxian..
Facebook 3.1K Frequency 1 post / day FeedSpot 102 Posts 1082 DA 35 Location US Get Email Contact

4. Nature | Spinocerebellar ataxia

Spinocerebellar ataxia refers to a group of genetic, progressive neurodegenerative disorders of the spine and the cerebellum that can affect balance, ...coordination and speech. Latest news and research from Nature.com on the topic of Spinocerebellar ataxia.more
nature.com/subject..
Facebook 500.7KTwitter 2.5MInstagram 106.8K Frequency 1 post / quarter FeedSpot 39 Posts 118 DA 94 Location UK Get Email Contact

5. Action for A-T

Action for A-T is a charity that was set up by two parents following their daughter being diagnosed with a rare genetic disorder called Ataxia-Telangi...ectasia (A-T). Raising money for medical research for Ataxia Telangiectasia (A-T) - rare, neurodegenerative, genetic disease leading to disability and premature death.more
actionforat.org
Facebook 3.5KTwitter 1.1K Frequency 3 posts / month FeedSpot 31 Posts 104 DA 37 Location UK Get Email Contact

6. Friedreich Ataxia Scientific News

Friedreich Ataxia and close related scientific news. Topics related to rare diseases.
friedreichscientif..
Facebook 534Twitter 74 Frequency 1 post / day Since Dec FeedSpot 33 Posts 848 DA 12 Get Email Contact

7. National Ataxia Foundation

Get Information on Ataxia, its symptoms, treatment, Ataxia research, and stories of people living with Ataxia. National Ataxia Foundation (NAF) is ded...icated to improving the lives of persons affected by ataxia through support, education, and research.more
ataxia.org/blog
Facebook 10.4KTwitter 2.9K Frequency 1 post / month FeedSpot 13 Posts 65 DA 53 Location US Get Email Contact

8. Fara NZ Blog

Friedreich Ataxia Research Association New Zealand (FARA NZ) is a charitable organisation set up to improve the quality of life for people diagnosed w...ith FA, by supporting them and their families and to assist the funding of scientific research to treat this rare neurological degenerative condition.more
fara.org.nz/blog
Facebook 266 Frequency 4 posts / year FeedSpot 31 Posts 29 DA 5 Location New Zealand Get Email Contact

9. Friedreich Ataxia Network | Queensland's FA support network

We are FAN, a support- and information-sharing network for anyone impacted by Friedreich Ataxia (FA) FAers, family, carers and friends.
fan.asn.au
Twitter 383 Frequency 2 posts / year FeedSpot 31 Posts 32 DA 18 Location Australia Get Email Contact

10. The Life of Riley's

Our journey with Friedreichs Ataxia. Our son has recently been diagnosed with Friedreichs Ataxia and Cardiomyopathy. This is an honest blog about our ...journey as a family.more
lifeofrileys.org
Facebook 383 Frequency 1 post / quarter FeedSpot 31 Posts 36 DA 3 Get Email Contact

11. National Ataxia Foundation Blog

Connecting Ataxia families, researchers, clinicians and the community. NAF is a membership supported nonprofit organization established in 1957 to hel...p persons with Ataxia and their families. The Foundation's primary purpose is to support Ataxia research, provide vital programs and services for Ataxia families, and help in the search for a cure. more
ataxia.org/blog
Facebook 10.4KTwitter 2.9K FeedSpot 36 Posts 4 DA 53 Location US Get Email Contact

12. FARA Blog

The Friedreich Ataxia Research Association (fara) is a not for profit organisation that supports research into treatments and a cure for Friedreich At...axia. fara does not receive State or Commonwealth Government support and relies largely on the family and friends of Friedreich Ataxia patients and generous businesses within Australia and New Zealand to fund its research programs.more
fara.org.au/blog
Facebook 1.4KInstagram 859 Frequency 1 post / year FeedSpot 32 Posts 23 DA 30 Location Australia Get Email Contact

13. Ataxia & Me

Read real stories from real people with Ataxia. If you are affected by Ataxia, whether as a patient, family member, carer, relative, Healthcare profes...sional, or friend, join us on this adventure of Ataxia awareness and communication. Ataxia and Me is a non-profit organisation helping to maximise the patient voice within the medical, health, and pharma community.more
ataxia-and-me.org/..
Facebook 1.3KTwitter 3.9K Frequency 1 post / month FeedSpot 13 Posts 15 DA 12 Location US Get Email Contact

14. Hope For Ataxia Blog

Our mission at Hope For Ataxia is to raise Ataxia awareness globally. Our blog features stories of people living with Ataxia, along with Ataxia news a...nd recipes for people with Ataxia to cook.more
hopeforataxia.org/..
Facebook 1.7KTwitter 62 Frequency 30 posts / year FeedSpot 13 Posts 103 DA 12 Location Canada Get Email Contact

15. Retrospective Lily | My Disability Experience

My name is Lily. I'm 25 years old. I have Friedreich's Ataxia and use a wheelchair. This section of my blog is about my disability experience....more
retrospectivelily...
Facebook 128 FeedSpot 37 Posts 50 DA 13 Location US Get Email Contact

16. Ataxia 16-30 Blog

A community for young people living with ataxia. The national UK charity for people affected by ataxia. Fighting for a cure for all ataxias.
ataxia16to30.org.u..
Facebook 8.4KTwitter 53 FeedSpot 38 Posts 37 DA 11 Location UK Get Email Contact

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