20 Best Ataxia Blogs & Websites

1. Ataxia UK Blog

London, England, UK
Ataxia UK is the national charity for everyone affected by ataxia. We have been running for over forty years. Our mission is to support people affecte...d by ataxia with research, information, welfare grants, campaigning and the opportunity to meet and help others in the same position.more
ataxia.org.uk
RSS 8.4K 4.6K 2.7K 1 post / month 46 Get Email Contact

2. FARA - Scientific News

Downingtown, Pennsylvania, US
FARA's Mission is to marshal and focus the resources and relationships needed to cure FA by raising funds for research, promoting public awareness..., and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases.more
curefa.org/scienti..
RSS 13.5K 2.6K 4 posts / week 51 Get Email Contact

3. Friedreich's Ataxia News

Pensacola, Florida, US
At Friedreich's Ataxia News, we strive to bring to light the latest science and research pertaining to FA so that patients and their families can ...access and understand it. Our editorial staff scours clinical trials.gov, PubMed, and other sources to pick up on the most recent FA studies and present their findings in a way that patients can understand.more
friedreichsataxian..
RSS 3.1K 6 posts / month 36 Get Email Contact

4. Nature | Spinocerebellar ataxia

London, England, UK
Spinocerebellar ataxia refers to a group of genetic, progressive neurodegenerative disorders of the spine and the cerebellum that can affect balance, ...coordination and speech. Latest news and research from Nature.com on the topic of Spinocerebellar ataxia.more
nature.com/subject..
RSS 506K 2.6M 845 1 post / month 94 Get Email Contact

5. Action for A-T

UK
Action for A-T is a charity that was set up by two parents following their daughter being diagnosed with a rare genetic disorder called Ataxia-Telangi...ectasia (A-T). Raising money for medical research for Ataxia Telangiectasia (A-T) - rare, neurodegenerative, genetic disease leading to disability and premature death.more
actionforat.org
RSS 3.5K 1.1K 685 1 post / week 37 Get Email Contact

6. Friedreich Ataxia Scientific News

Friedreich Ataxia and close related scientific news. Topics related to rare diseases.
friedreichscientif..
RSS 534 74 2 posts / week Dec 12 Get Email Contact

7. National Ataxia Foundation

Minneapolis, Minnesota, US
Get Information on Ataxia, its symptoms, treatment, Ataxia research, and stories of people living with Ataxia. National Ataxia Foundation (NAF) is ded...icated to improving the lives of persons affected by ataxia through support, education, and research.more
ataxia.org/blog
RSS 10.4K 2.9K 1.7K 1 post / week 55 Get Email Contact

8. Ataxia & Me

US
Read real stories from real people with Ataxia. If you are affected by Ataxia, whether as a patient, family member, carer, relative, Healthcare profes...sional, or friend, join us on this adventure of Ataxia awareness and communication. Ataxia and Me is a non-profit organisation helping to maximise the patient voice within the medical, health, and pharma community.more
ataxia-and-me.org/..
RSS 1.3K 3.9K 1.3K 1 post / quarter 12 Get Email Contact

9. Retrospective Lily | My Disability Experience

Greensboro, North Carolina, US
My name is Lily. I'm 25 years old. I have Friedreich's Ataxia and use a wheelchair. This section of my blog is about my disability experience....more
retrospectivelily...
RSS 128 1 post / quarter 13 Get Email Contact

10. The Life of Riley's

Our journey with Friedreichs Ataxia. Our son has recently been diagnosed with Friedreichs Ataxia and Cardiomyopathy. This is an honest blog about our ...journey as a family.more
lifeofrileys.org
RSS 383 1 post / quarter 3 Get Email Contact

11. Fara NZ Blog

New Zealand
Friedreich Ataxia Research Association New Zealand (FARA NZ) is a charitable organisation set up to improve the quality of life for people diagnosed w...ith FA, by supporting them and their families and to assist the funding of scientific research to treat this rare neurological degenerative condition.more
fara.org.nz/blog
RSS 266 1 post / year 5 Get Email Contact

12. Team Kendall | Together We Will Cure Friedreich's Ataxia

Team Kendall is proud to support awareness for Friedreich's Ataxia, a rare genetic disease. Learn more about Friedreich's Ataxia and how you c...an help.more
teamkendall.org/bl..
RSS 336 23 581 21 posts / year 11 Get Email Contact

13. Ataxia 16-30 Blog

UK
A community for young people living with ataxia. The national UK charity for people affected by ataxia. Fighting for a cure for all ataxias.
ataxia16to30.org.u..
RSS 8.4K 54 11 Get Email Contact

14. National Ataxia Foundation Blog

Minneapolis, Minnesota, US
Connecting Ataxia families, researchers, clinicians and the community. NAF is a membership supported nonprofit organization established in 1957 to hel...p persons with Ataxia and their families. The Foundation's primary purpose is to support Ataxia research, provide vital programs and services for Ataxia families, and help in the search for a cure. more
ataxia.org/blog
RSS 10.4K 2.9K 55 Get Email Contact

15. Friedreich Ataxia Network | Queensland's FA support network

Queensland, Australia
We are FAN, a support- and information-sharing network for anyone impacted by Friedreich Ataxia (FA) FAers, family, carers and friends.
fan.asn.au
RSS 382 1 post / year 18 Get Email Contact

16. Hope For Ataxia Blog

Toronto, Ontario, Canada
Our mission at Hope For Ataxia is to raise Ataxia awareness globally. Our blog features stories of people living with Ataxia, along with Ataxia news a...nd recipes for people with Ataxia to cook.more
hopeforataxia.org/..
RSS 1.7K 62 12 Get Email Contact

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