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London About Blog Ataxia UK is the national charity for everyone affected by ataxia. We have been running for over forty years. Our mission is to support people affected by ataxia with research, information, welfare grants, campaigning and the opportunity to meet and help others in the same position. Frequency 2 posts / month Blog ataxia.org.uk/Blogs
Facebook fans 6.9K ⋅ Twitter followers 3.5K ⋅ Social Engagement 2ⓘ ⋅ Domain Authority 48ⓘ ⋅ Alexa Rank 7.8Mⓘ
Downingtown, PA About Blog FARA's Mission is to marshal and focus the resources and relationships needed to cure FA by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases. Frequency 1 post / week Blog curefa.org/scientific-news
Facebook fans 12.6K ⋅ Twitter followers 2.1K ⋅ Domain Authority 51ⓘ ⋅ Alexa Rank 2Mⓘ
About Blog At Friedreich's Ataxia News, we strive to bring to light the latest science and research pertaining to FA so that patients and their families can access and understand it. Our editorial staff scours clinical trials.gov, PubMed, and other sources to pick up on the most recent FA studies and present their findings in a way that patients can understand. Frequency 2 posts / day Blog friedreichsataxianews.com
Facebook fans 2.8K ⋅ Social Engagement 19ⓘ ⋅ Domain Authority 32ⓘ ⋅ Alexa Rank 1.3Mⓘ
London About Blog Spinocerebellar ataxia refers to a group of genetic, progressive neurodegenerative disorders of the spine and the cerebellum that can affect balance, coordination and speech. Latest news and research from Nature.com on the topic of Spinocerebellar ataxia. Frequency 1 post / week Blog nature.com/subjects/spinocer..
Facebook fans 953.3K ⋅ Twitter followers 1.7M ⋅ Instagram Followers 106.8K ⋅ Domain Authority 93ⓘ ⋅ Alexa Rank 1.3Kⓘ
UK About Blog Action for A-T is a charity that was set up by two parents following their daughter being diagnosed with a rare genetic disorder called Ataxia-Telangiectasia (A-T). Raising money for medical research for Ataxia Telangiectasia (A-T) - rare, neurodegenerative, genetic disease leading to disability and premature death. Frequency 1 post / month Blog actionforat.org
Facebook fans 3.4K ⋅ Twitter followers 993 ⋅ Social Engagement 9ⓘ ⋅ Domain Authority 37ⓘ ⋅
About Blog Friedreich Ataxia and close related scientific news. Topics related to rare diseases. Frequency 2 posts / week Since Dec Blog friedreichscientificnews.blo..
Facebook fans 510 ⋅ Twitter followers 56 ⋅ Domain Authority 12ⓘ ⋅
About Blog Team Kendall is proud to support awareness for Friedreich's Ataxia, a rare genetic disease. Learn more about Friedreich's Ataxia and how you can help. Frequency 5 posts / quarter Blog teamkendall.org/blog
Facebook fans 306 ⋅ Twitter followers 28 ⋅ Instagram Followers 581 ⋅ Domain Authority 8 ⋅
8. FARA Blog
About Blog The Friedreich Ataxia Research Association (fara) is a not for profit organisation that supports research into treatments and a cure for Friedreich Ataxia. fara does not receive State or Commonwealth Government support and relies largely on the family and friends of Friedreich Ataxia patients and generous businesses within Australia and New Zealand to fund its research programs. Frequency 1 post / quarter Blog fara.org.au/blog
Facebook fans 1.3K ⋅ Instagram Followers 859 ⋅ Social Engagement 68 ⋅ Domain Authority 29 ⋅
United Kingdom About Blog A community for young people living with ataxia. The national UK charity for people affected by ataxia. Fighting for a cure for all ataxias. Blog ataxia16to30.org.uk/Blogs/blog
Facebook fans 6.5K ⋅ Twitter followers 50 ⋅ Domain Authority 11 ⋅
Minneapolis, MN About Blog Connecting Ataxia families, researchers, clinicians and the community. NAF is a membership supported nonprofit organization established in 1957 to help persons with Ataxia and their families. The Foundation's primary purpose is to support Ataxia research, provide vital programs and services for Ataxia families, and help in the search for a cure. Blog ataxia.org/blog
Facebook fans 8.7K ⋅ Twitter followers 2.1K ⋅ Social Engagement 96 ⋅ Domain Authority 53 ⋅ Alexa Rank 1.4M
11. Fara NZ Blog
About Blog Friedreich Ataxia Research Association New Zealand (FARA NZ) is a charitable organisation set up to improve the quality of life for people diagnosed with FA, by supporting them and their families and to assist the funding of scientific research to treat this rare neurological degenerative condition. Frequency 1 post / year Blog fara.org.nz/blog
Facebook fans 253 ⋅ Domain Authority 5 ⋅
Queensland About Blog We are FAN, a support- and information-sharing network for anyone impacted by Friedreich Ataxia (FA) FAers, family, carers and friends. Frequency 4 posts / year Blog fan.asn.au
Social Engagement 2 ⋅ Domain Authority 18 ⋅
Greensboro, NC About Blog My name is Lily. I'm 25 years old. I have Friedreich's Ataxia and use a wheelchair. This section of my blog is about my disability experience. Frequency 1 post / month Blog retrospectivelily.com/catego..
Facebook fans 112 ⋅ Domain Authority 13 ⋅
About Blog Our journey with Friedreichs Ataxia. Our son has recently been diagnosed with Friedreichs Ataxia and Cardiomyopathy. This is an honest blog about our journey as a family. Frequency 1 post / month Blog lifeofrileys.org
Facebook fans 194 ⋅ Social Engagement 47 ⋅ Domain Authority 3 ⋅
Tags: ataxia news