25 Best ALS Blogs (Amyotrophic Lateral Sclerosis)
ALS Blogs
Here are 25 Best ALS Blogs you should follow in 2023
1. The ALS Association Blog
Arlington, Virginia, US
Established in 1985, The ALS Association is the only national nonprofit organization fighting ALS on every front. By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The Association builds hope and enhances the quality of life while aggressively searching for new treatments and a cure.
als.org/blog
860.9K⋅ 33.6K ⋅2 posts / week ⋅ Mar 2012 Get Email Contact
2. ALS News Today
Pensacola, Florida, US
ALS News Today is dedicated to providing comprehensive coverage of news related to ALS.
alsnewstoday.com
4.5K⋅ 1.4K ⋅1 post / day Get Email Contact
3. I AM ALS
Founded by ALS patient Brian Wallach and his wife, Sandra Abrevaya, I AM ALS is revolutionizing how we cure ALS by empowering and mobilizing patients, engaging with policy-makers, and offering vital resources for people impacted by ALS.
iamals.org/updates
11.8K⋅ 25.3K ⋅2 posts / month ⋅ Jun 2019 Get Email Contact
4. ALS Therapy Development Institute | ALS News
Watertown, Massachusetts, US
ALS TDI is the most comprehensive drug discovery lab focused solely on ALS research. Our cutting-edge approach to ALS research incorporates every aspect of drug discovery and development, under one roof, to find potential treatments as quickly as possible. Stay up to date on ALS news, press releases, and blogs from the ALS Therapy Development Institute.
als.net/news
20.6K⋅ 9.9K ⋅3 posts / day Get Email Contact
5. Les Turner ALS Foundation
Skokie, Illinois, US
The Les Turner ALS Foundation is one of the longest-serving independent ALS groups in the country. For over 40 years, we have taken an individualized approach to ensure each person living with the disease receives the best quality of care and access to the most promising therapies.
lesturnerals.org/a..
5.6K⋅ 3.4K ⋅1 post / week Get Email Contact
6. ALS Society of Canada
Ontario, Canada
Welcome to the ALS Canada blog where you'll find a collection of articles and updates on ALS-related topics. We strive to develop content that our community will find valuable and deliver up-to-date information about ALS research, community-based support, and advocacy initiatives. We also provide Ontario fundraising event updates and share personal stories about people and families living with ALS in Ontario to keep our community connected.
als.ca/blog
9.5K⋅ 7.4K ⋅8 posts / quarter ⋅ Apr 2015 Get Email Contact
7. ALS Association of Texas
Texas, US
The ALS Association of Texas works to improve the lives of people living with ALS and leave no stone unturned in the search for its cure.
alstexas.org/blog
7.3K⋅ 1.7K ⋅2 posts / month ⋅ Jun 2015 Get Email Contact
8. Target ALS
New York, US
Launched in 2013, Target ALS envisions a world in which no one dies from ALS. Read the latest news and stories from Target ALS and their research team. Learn from top doctors, professors, and more. Join us in the fight.
targetals.org/news..
631⋅ 1.3K ⋅1 post / day ⋅ Feb 2013 Get Email Contact
9. How I Live Now: Life With ALS
Portland, Oregon, US
Hello, I'm Rachel Doboga. When I was diagnosed with ALS at age 28, I lost my teaching career, my plans to travel, and the chance to start a family with my husband. I lost my future. I almost lost hope, but being surrounded by so many people unwilling to let me go helped me step back from the edge. Now I am determined not to let a day go by without fighting for my life. Follow me to learn about ALS and join the fight to defeat it!
howilivewithals.com
196⋅ 199 ⋅1 post / quarter ⋅ May 2016 Get Email Contact
10. The ALS Association Greater New York Chapter | The Official Blog
New York, US
The ALS Association relentlessly pursues its mission to help people living with ALS and search for the cure of the progressive neurodegenerative disease that took the life and name of Baseball Legend Lou Gehrig.
als-ny.org/blog
8.7K⋅ 2.4K ⋅1 post / week ⋅ Jul 2008 Get Email Contact
11. Ken's Caucus
Ken Menkhaus shares his journey of fighting ALS.
kenscaucus.home.blog
2 posts / year ⋅ Apr 2019 Get Email Contact
12. ALS and Wellness Blog
Green Valley, Arizona, US
Sharing wellness and motivation for persons living with ALS, MND (Amyotrophic Lateral Sclerosis also known as Lou Gehrig's disease) their caregivers, family, and friends! Because - - You CAN be WELL while living with ALS.
alsandwellness.blo..
328 ⋅2 posts / quarter Get Email Contact
13. SimpliHere Blog
Melrose, Massachusetts, US
The mission of SimpliHere is to help patients and families navigate the debilitating challenges of ALS by helping them to communicate basic needs, easily reach caregivers, and share information with others affected by ALS.
simplihere.com/blog
911⋅ 69 ⋅1 post / month ⋅ Aug 2018 Get Email Contact
14. MOFF Foundation
San Luis Obispo, California, US
The Martha Olson-Fernandez Foundation (MOFF) is a nonprofit foundation that serves the ALS community with our grant-making capabilities. Our funding is annually distributed to national ALS research projects and ALS patient care outreach programs.
moffoundation.com/..
374 ⋅4 posts / year ⋅ Nov 2015 Get Email Contact
15. ALS Association Western Pennsylvania Chapter Blog
Pittsburgh, Pennsylvania, US
Supporting people living with ALS and their loved ones through services and education in central and western Pennsylvania.
cure4als.home.blog
3.3K⋅ 1.4K ⋅2 posts / quarter ⋅ Feb 2020 Get Email Contact
16. Kelsie Snow Writes
Calgary, Alberta, Canada
Myself Kelsie Snow. I'm a journalist and freelance writer. In June 2019, my husband, Chris, was diagnosed with ALS and given 6-18 months to live. Almost immediately afterward I started writing about our experiences and, eventually, started publishing my stories here.
kelsiesnowwrites.c..
40.2K ⋅ Jun 2018 Get Email Contact
17. Answer ALS | News
New Orleans, Louisiana, US
Answer ALS is the single largest & most comprehensive ALS research project in history, producing more ALS data than has ever been amassed, while openly sharing with the global research community.
answerals.org/news
8.3K⋅ 2.5K ⋅1 post / year ⋅ Sep 2014 Get Email Contact
18. Susan Mast ALS Foundation Blog
Grand Rapids, Michigan, US
The vision of the Susan Mast ALS Foundation is to build a strong foundation to ensure all ALS patients and families have the much needed support, guidance and resources available to them today and for years to come. We strive to strengthen and build our relationships with community partners so we can continue our mission of providing excellent support to ALS patients, families, and caregivers in all of West Michigan.
susanmastals.org/blog
9 ⋅5 posts / year ⋅ Mar 2020 Get Email Contact
19. Stand Up 2 ALS Blog
Texas, US
My name is Guillermo and I was diagnosed with ALS in November of 2015. As a husband and father of three wonderful children, I live for them. They inspire me to keep on keeping on. I hope to provide some inspiration, in turn, to someone who may read the words that I type here. Please follow me as I share my journey and thoughts with you!
standup2als.com/blog
603⋅ 2K ⋅ Sep 2018 Get Email Contact
20. ALS Ohana
Honolulu, Hawaii, US
Our ultimate goal is to help persons with ALS, their families, significant others and caregivers attain a quality of life that is meaningful and achievable. Our services are directed primarily to help families of pALS through sharing of information, referral, training, emotional/social support, and advocacy.
alsohana.org
317⋅ 227 ⋅ May 2009 Get Email Contact
21. ENCALS
Utrecht, Netherlands
ENCALS is a network of ALS centres in Europe.
encals.eu/news
184 ⋅1 post / month ⋅ Jul 2011 Get Email Contact
22. Leanne is living with ALS
Leanne was diagnosed with ALS (Amyotrophic Lateral Sclerosis, also known as Lou Gehrig's disease) in December 2016 at the age of 43. Before her diagnosis, she was an elementary school teacher who enjoyed many hobbies including yoga, baking, reading, and all types of fitness. Here she is sharing her story and life with ALS.
leanneislivingwith..
6.9K ⋅1 post / year ⋅ Mar 2019 Get Email Contact
23. Live Love Laugh with Carol | Blog
Ottawa, Ontario, Canada
On September 19th, 2013 I was diagnosed with a motor neuron disease otherwise known as Lou Gehrig's Disease otherwise known as ALS. Travis & I have created this website to stay in touch with friends & family, to update everyone on my status, and to include loved ones in our journey.
livelovelaughwithc..
83 ⋅ Sep 2013 Get Email Contact
ALS Bloggers
Blogger Name | Blog Link | Total Blog Posts | |
---|---|---|---|
Kristin Neva | alsnewstoday.com | 47 | |
Marta Figueiredo PhD | alsnewstoday.com | 42 | |
lesturner | lesturnerals.org | 37 | |
Dagmar Munn | alsnewstoday.com | 33 | |
Rick Jobus | alsnewstoday.com | 31 | |
Rhema Jones | alstexas.org | 28 | |
Marisa Wexler MS | alsnewstoday.com | 26 | |
Mary Chapman | alsnewstoday.com | 26 | |
Anqi Shen | als.ca | 25 | |
Patricia Inacio PhD | alsnewstoday.com | 25 | |
Steve Schonberg | targetals.org | 24 | |
Lindsey Shapiro PhD | alsnewstoday.com | 20 | |
Hawken Miller | alsnewstoday.com | 20 | |
Lauren Poplak | als.ca | 14 | |
Melissa Rentfrow | targetals.org | 14 | |
howilivewithals | howilivewithals.com | 14 | |
Marisa Wexler, MS | alsnewstoday.com | 13 | |
wpadmin | lesturnerals.org | 13 | |
Marta Figueiredo, PhD | alsnewstoday.com | 13 | |
Shayna Korol | alsnewstoday.com | 10 | |
Steve Bryson PhD | alsnewstoday.com | 10 | |
Tonya Hitschmann | alstexas.org | 10 | |
alsawpa | cure4als.home.blog | 10 | |
Emily Cerbone | lesturnerals.org | 8 | |
Margarida Maia PhD | alsnewstoday.com | 8 |
ALS Blog Topics
Topic | Number of posts |
---|---|
Joyful Sorrow - A Column By Kristin Neva | 35 |
Als | 29 |
Living Well With ALS - A Column By Dagmar Munn | 25 |
ALS Diagnosis | 23 |
Amylyx Pharmaceuticals | 22 |
AMX0035 | 21 |
Advocacy | 20 |
Research | 17 |
From The Experts | 17 |
Understanding The Science | 17 |
Foundation Blog | 16 |
Notes From The ALS Front - A Column By Rick Jobus | 16 |
Caregivers | 15 |
Family | 14 |
My Latest Post | 14 |
Disease Progression | 13 |
ALS Caregivers | 13 |
Neurodegenerative Disease | 13 |
Caregivers And Family | 12 |
Als Walk For Life | 12 |