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Downingtown, Pennsylvania, United States About Blog FARA's Mission is to marshal and focus the resources and relationships needed to cure FA by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases. Frequency 3 posts / week Blog curefa.org/scientific-news
Facebook fans 12.6K ⋅ Twitter followers 2.1K ⋅ Alexa Rank 1.1Mⓘ View Latest Posts ⋅ Get Email Contact
Pensacola, Florida, United States About Blog At Friedreich's Ataxia News, we strive to bring to light the latest science and research pertaining to FA so that patients and their families can access and understand it. Our editorial staff scours clinical trials.gov, PubMed, and other sources to pick up on the most recent FA studies and present their findings in a way that patients can understand. Frequency 4 posts / week Blog friedreichsataxianews.com
Facebook fans 2.8K ⋅ Social Engagement 75ⓘ ⋅ Alexa Rank 3.7Mⓘ View Latest Posts ⋅ Get Email Contact
London, England, United Kingdom About Blog Spinocerebellar ataxia refers to a group of genetic, progressive neurodegenerative disorders of the spine and the cerebellum that can affect balance, coordination and speech. Latest news and research from Nature.com on the topic of Spinocerebellar ataxia. Frequency 3 posts / quarter Blog nature.com/subjects/spinocer..
Facebook fans 953.3K ⋅ Twitter followers 2.3M ⋅ Instagram Followers 106.8K ⋅ Social Engagement 3ⓘ ⋅ Alexa Rank 1.1Kⓘ View Latest Posts ⋅ Get Email Contact
United Kingdom About Blog Action for A-T is a charity that was set up by two parents following their daughter being diagnosed with a rare genetic disorder called Ataxia-Telangiectasia (A-T). Raising money for medical research for Ataxia Telangiectasia (A-T) - rare, neurodegenerative, genetic disease leading to disability and premature death. Frequency 4 posts / quarter Blog actionforat.org
Facebook fans 3.4K ⋅ Twitter followers 993 ⋅ Social Engagement 5ⓘ ⋅ View Latest Posts ⋅ Get Email Contact
About Blog Friedreich Ataxia and close related scientific news. Topics related to rare diseases. Frequency 1 post / day Since Dec Blog friedreichscientificnews.blo..
Facebook fans 510 ⋅ Twitter followers 62 ⋅ View Latest Posts ⋅ Get Email Contact
Queensland, Australia About Blog We are FAN, a support- and information-sharing network for anyone impacted by Friedreich Ataxia (FA) FAers, family, carers and friends. Frequency 1 post / month Blog fan.asn.au
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Greensboro, North Carolina, United States About Blog My name is Lily. I'm 25 years old. I have Friedreich's Ataxia and use a wheelchair. This section of my blog is about my disability experience. Frequency 2 posts / quarter Blog retrospectivelily.com/catego..
Facebook fans 118 ⋅ View Latest Posts ⋅ Get Email Contact
About Blog Our journey with Friedreichs Ataxia. Our son has recently been diagnosed with Friedreichs Ataxia and Cardiomyopathy. This is an honest blog about our journey as a family. Frequency 1 post / quarter Blog lifeofrileys.org
Facebook fans 194 ⋅ Social Engagement 61 ⋅ View Latest Posts ⋅ Get Email Contact
London, England, United Kingdom About Blog Ataxia UK is the national charity for everyone affected by ataxia. We have been running for over forty years. Our mission is to support people affected by ataxia with research, information, welfare grants, campaigning and the opportunity to meet and help others in the same position. Frequency 30 posts / year Blog ataxia.org.uk/Blogs
Facebook fans 6.9K ⋅ Twitter followers 3.5K ⋅ Social Engagement 5 ⋅ Alexa Rank 4.5M View Latest Posts ⋅ Get Email Contact
About Blog Team Kendall is proud to support awareness for Friedreich's Ataxia, a rare genetic disease. Learn more about Friedreich's Ataxia and how you can help. Blog teamkendall.org/blog
Facebook fans 320 ⋅ Twitter followers 25 ⋅ Instagram Followers 581 ⋅ View Latest Posts ⋅ Get Email Contact
11. FARA Blog
Australia About Blog The Friedreich Ataxia Research Association (fara) is a not for profit organisation that supports research into treatments and a cure for Friedreich Ataxia. fara does not receive State or Commonwealth Government support and relies largely on the family and friends of Friedreich Ataxia patients and generous businesses within Australia and New Zealand to fund its research programs. Frequency 3 posts / year Blog fara.org.au/blog
Facebook fans 1.3K ⋅ Instagram Followers 859 ⋅ Social Engagement 162 ⋅ View Latest Posts ⋅ Get Email Contact
United Kingdom About Blog A community for young people living with ataxia. The national UK charity for people affected by ataxia. Fighting for a cure for all ataxias. Blog ataxia16to30.org.uk/Blogs/blog
Facebook fans 6.5K ⋅ Twitter followers 51 ⋅ View Latest Posts ⋅ Get Email Contact
Minneapolis, Minnesota, United States About Blog Connecting Ataxia families, researchers, clinicians and the community. NAF is a membership supported nonprofit organization established in 1957 to help persons with Ataxia and their families. The Foundation's primary purpose is to support Ataxia research, provide vital programs and services for Ataxia families, and help in the search for a cure. Blog ataxia.org/blog
Facebook fans 8.7K ⋅ Twitter followers 2.1K ⋅ Alexa Rank 1.4M View Latest Posts ⋅ Get Email Contact
14. Fara NZ Blog
New Zealand About Blog Friedreich Ataxia Research Association New Zealand (FARA NZ) is a charitable organisation set up to improve the quality of life for people diagnosed with FA, by supporting them and their families and to assist the funding of scientific research to treat this rare neurological degenerative condition. Blog fara.org.nz/blog
Facebook fans 253 ⋅ View Latest Posts ⋅ Get Email Contact
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